I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Monday, December 31, 2007
Happy New Years
We wish everyone a happy, healthy, new year. I am looking down at the clock on my computer and it's an hour before midnight and what am I doing??? I'm blogging!!! It just goes to show you that it sure has been an unusual year! This year our family is in three different places. Wyatt is in the hospital, Benji is at home, and Chloe and I are at my parents. Our wish for the next coming year will be to be together as a family under one roof!! Luckily Wyatt slept for most of the day because he was moved from the annex to room #1 with a child who needed a lot of care. Then Wyatt was moved to room #3 which was his third change in one day. I was getting ready to leave to put Chloe to bed and Wyatt started de-stating with his oxygen saturation levels. His chest x-ray today showed that either his left lung collapsed or it's filled with fluid, therefore it's difficult for him to breath. However, we got him stabilized and when I was leaving, he was sound asleep and stable. If all stays calm, he will most likely be moved to the 6th floor at Hopkins and we'll probably stay there for a while. The 6th floor is a step down unit for pediatric patients. Wyatt's other surgeon will come back on Wednesday and then a plan will be formulated. Happy New Year everyone and thank you for everything. A mom from Scotland e-mailed me her son's blog who also has CDH. Check it out at It's a small world!!
Sunday, December 30, 2007
The strongest , bravest person I know...
Who would of thought that the strongest, bravest person I know is my son. Today we received a phone from Mt. Washington saying that Wyatt is getting transferred back to Johns Hopkins to the PICU where it all started. When I called Mt. Wash this morning, Wyatt was doing GREAT! But then in between the morning and when we were going to visit him in the afternoon Wyatt's nurse saw him swinging his arms and legs and discovered that he was choking on his own vomit. His heart rate dropped to 60 bmp. He recovered, but then his heart rate jumped to the 190's. The doctor put an IO in his leg because they were unable to find a vein for an IV. An IO is a large needle (I took a picture and it will be posted in the near future)that is injected through the leg bone to the marrow. Benji is sick at home with the flu so I am staying at my parents so I can stay healthy. So my Dad and I arrived at Mt. Wash when the ambulance arrived with the EMT's, PICU nurse, and a PICU doctor. We all boarded the ambulance and rode to Hopkins together (I think Wyatt just wanted another ambulance ride!). Wyatt was stable, a little pale, and appeared thinner. The surgeon said that he experience a "life-threatening" event today. When we arrived at Hopkins, the IO was removed and the nurse attempted to get an IV in. It was unsuccessful so the doctor tried to put a central line in his leg, which was unsuccessful so she called the surgeon, Dr. Chandler (who helped with Wyatt's original surgery) to put in a central line in the leg which was unsuccessful. Then she attempted to put the central line in his neck and it worked. Thank goodness. The total attempts took about 3 hours and the next step would of been going to the operating room!! Dr. Chandler was awesome... so patient and always having a great attitude. While my dad and I waited for 3 hours in the waiting room, we met a 78 year old women who sits in the waiting room all day while her daughter is with her husband who has a staph infection. She knew everything about every patient, so we got the scoop on everybody!! We also met a dad who has a 13 year old daughter diagnosed with cancer with a ten percent chance. The PICU is so intense and such a special place. Every family has a story and it's all very serious. I also met a family that has been there since Sept. 1st with their young child. They come everyday and stay all day with him. Please kick up the prayers into high gear... Wyatt really needs them now and so do all the other PICU families. He is such a strong little boy. Also... thank you Dan, Grace, Maria, and Joe for visiting Wyatt yesterday:))) and Benji... get better too!!! Happy New Year everyone. We are extremely thankful for all the support and PRAYERS from everyone.
Saturday, December 29, 2007
Stomach flu hits the Koger Household!
Well... Chloe got the 24 hour stomach flu and so did Benji, and I have a cold....so I don't think it's a good idea for us to visit Wyatt. It would be horrible if we passed along our germs to him. My mom is visiting him now and is spending the day with him. Wyatt's feeds are slowly increasing... 1/4, then 1/2, and if all is well Sunday evening 3/4 and then 100 percent. He is spitting up about 5 ml every hour... I hope he does not have what we all have. We need to get Wyatt healthy and stable to get him home. Yesterday he was awake and active all day long. Aunt Danielle and four of her friends (the dream team) visited Wyatt (thank you), then I spent the afternoon with him, and then Benji, his sister, and her husband came by. It was a busy day for Wyatt because OT, PT, and Childlife came by too!!!
Thursday, December 27, 2007
All smiles today!
Wyatt was happy today. He gave me the biggest smile that I ever saw and we could not pull out the camera fast enough to prove it. He continued to smile throughout the day. Wyatt also started eating real food today after losing about 3 ounces from being on fluids. Hopefully things will start looking up and we can get Wyatt strong and healthy to come home!
Wednesday, December 26, 2007
The true meaning of Christmas... Wyatt and Chloe
The past two Christmas' we received the best gifts of all.... Wyatt and Chloe. This Christmas we had family visiting and the big holiday dinner at our house. We went to church on Christmas Eve and Chloe was a little angel. On Christmas morning, we opened gifts with Chloe and the family and then spent the afternoon with Wyatt. Wyatt was in a great mood for his first Christmas. I think he really enjoyed us video taping every minute. He's such a ham!! The hospital decorated two large shopping bags with gifts (thank you!!!) for him and he had a stocking of presents from Santa hanging on his crib. He also enjoyed all the visitors that came to see him on Christmas day. We organized shifts so someone would be with him for most of the day. He was happy and alert the entire time.
From the medical standpoint, Wyatt stopped vomiting dried blood and remained on IV fluid. This is helping his GI tract heal, but as a result, Wyatt lost some weight. Today he was placed back on pedilyte. We have to find out what is causing him to vomit blood. It seems to occur every weekend. Could it be the ng tube, could it be his medication... sodium, iron, prevacid, flovent, mobility med???? All I know is that Wyatt was sent to Mt. Washington to get stronger and gain weight before his possible g-tube surgery and we have not accomplished it yet. The problem is that Wyatt decides to vomit blood when his doctor is off... it' Christmas and Wyatt has had a different doctor everyday since Saturday and when a doctor is filling in, they don't like to make changes.... so Wyatt has been on fluids/pedilyte for several days. The nursing staff has been extremely nice, however, the nurse today told me that the VP of the hospital called her and said that I had to remove his mobiles because they can collect dust. I said I would be happy to clean out his crib and remove some of his stuffed animals and clean the mobiles everyday, but the mobiles are staying and I will be happy to talk with the VP directly. I have an almost 3 month old alert baby laying in bed at a hospital all day starring at a metal crib and white walls with OT, PT, and Child Life coming 2x a week each working with him for about 30 minutes. I'm about to go back to work and I am not about to take away the things that he loves to look at throughout the day. If the mobiles disappear, then I will bring a cot and live in the hospital next to his bed!!! How can a stranger walk by his crib and say this without knowing Wyatt and his personality? Sometimes I hear kids cry for 1/2 hour and I am not going allow that with Wyatt. He needs to feel like he is at home, happy and secure. Thanks for letting me vent... can you tell I'm a little upset by this???? Otherwise, Wyatt had a wonderful first Christmas and we enjoyed sharing it with him. We experienced the true meaning of Christmas...witnessing the support from our family and friends and thanking God for Wyatt. He is so very special.
ps- we got a new home phone number. If you don't have it... e-mail me at gbkoger@yahoo.com and I'll give it to you.
Tuesday, December 25, 2007
Santa Claus is coming to town!!
It's after midnight and everyone is sleeping. Soon it will be Christmas morning and Chloe will be super excited that Santa came!! It won't be the same with out Wyatt... all our family wants for Christmas is for Wyatt to be home, happy, and healthy. He is currently on IV fluid and not getting feed because he has brown blood in his spit up. The docs are giving his digestive system a break to heal. Our holiday wish is for Wyatt to have no more bloody spit up and for his vocal cords to heal so he does not have to get surgery. A very kind nurse, Danielle gave Wyatt a baby Shriek for Christmas.... thank you:)) Christmas morning will be spent with Chloe making memories and then with Wyatt making memories. We are looking forward to next Christmas when we can all be together. However, we will bring the video camera, Wyatt will open his presents and celebrate his first Christmas... it will be just like home!!
Sunday, December 23, 2007
Many visitors today!
This morning started with another phone call from the weekend doctor, a different doctor from yesterday. She said that Wyatt had dried blood in his spit up but it's less than yesterday. She called Dr. Abdullah, Wyatt's surgeon and he asked to speak with me. He said that it's not unusal for CDH babies to spit up dried up blood and as long as Wyatt's stats are ok and he is acting normally, then there is no need for concern. Wyatt's surgeons, Benji and I seem like we are on the same page. We both want Wyatt to get stronger and bigger before surgery if it's needed. We are also happy and thankful that Mt. Washington is on top of things and seems to take all measures when something happens. The line of communication between the surgeons and Mt. Washington is open and constant. Wyatt slept in my arms for most of the day and then later in the day, Benji's sister Tori and her husband Dani as well as Benji's dad came to visit him. Wyatt was wide awake and alert during their visit. I just love Wyatt so much... he is such a sweet natured child who loves to be held.
Wyatt likes to give his mom gray hair!
Today Benji and I took shifts to be with Wyatt. Benji had the morning shift and I had the afternoon/evening shift. My shift started early with a phone call from the doctor. Wyatt's spit up looked like coffee grinds which indicates dried blood. So all measures were taken... stool sample, stomach contents sample, and blood work. His blood count came back alarmingly low, so the weekend doctor called Wyatt's Hopkin's surgeons to see if he needed to go back to Hopkins. The transport team was on standby to pick him up. The surgeons recommended another blood sample be taken before he was transported to make sure it was not a mistake. Well guess what... his blood work came back fine and he stays at Mt. Washington for now. This happened last week too... In my "mom" opinion, Wyatt gets a new ng tube every Monday and dried blood is found in his spit up on the following Friday/Saturday. I think maybe the tube is poking his stomach??? who knows... but I really want Wyatt to stay put and get nice and strong and healthy!!! Danielle, Wyatt's nurse was extra special nice to him today since he had to go through so much. Wyatt is such a trooper and is acting like his normal self.
Friday, December 21, 2007
Wyatt meets Aunt Danielle!
Thank you Aunt Danielle for spending time with Wyatt. Thank you mom for watching Chloe, doing my laundry, and cleaning my house.... Family is wonderful and we are lucky!! I think my mom is "supermom!" I had to go to court because I pulled up in the bus lane at the Metro Station. The judge was sympathatic of me and I did not have to pay any fines or points!!! Yeah!! Wyatt had a good day today. He does sounds a little congested and his white blood cell count is higher than normal which indicates he is fighting an infection somewhere. Blood work shows nothing and we are waiting to get the results from the urine and blood culture. The antibiotics that was given to him for his pneumonia should help if he does have an infection. Wyatt tends to spit up often, so he sleeps on a styrofoam wedge at a 30 degree angle. Besides being a superhero fighting off infections, pneumonia and recovering from surgery, he will meet his Aunt Tori and Uncle Dani as well as see his other grandparents this weekend. I have had a busy couple of days preparing for family visiting, Christmas dinner at my house, and going back to work after the holidays.
ps- we have a new home phone number. If you do not know it- e-mail me and I will give it to you.- gbkoger@yahoo.com
ps- we have a new home phone number. If you do not know it- e-mail me and I will give it to you.- gbkoger@yahoo.com
Wednesday, December 19, 2007
Quiet day...
Today I entered Wyatt's room and no one was in there. I walked up to Wyatt's crib and he was lightly sleeping, so I walked up to his and whispered in his ear, "It's mommy!" and he smiled in his sleep and gently opened one eye. It made my day!! The rest of the day I held him and he slept in my arms and we played. It was a nice low key day. Each time I put in down in his crib, he would cry. So I would hold him and he stop crying. He loves being held... he feels so safe and secure. Tomorrow he is going to meet Aunt Danielle for the first time, while Wyatt's mom goes to court for parking in the bus lane at the metro station!!! (I was lost... it was unintentional)
Tuesday, December 18, 2007
Mom-mom and daddy visits Wyatt
Today was the 2nd day since Wyatt was born on Oct. 9th that I did not visit. It's terrible not to see him, but he was in good hands. My mom spent the entire day with him and Benji will spend the evening with him. Today PT made a reflux wedge for him to lay in. My mom says it's looks like he is in a bucket and the order is to have him in it while he is in bed. So I asked the doctor to wait to put him on it until I see it. Wyatt is always in bed expect when we hold him because he gets feed 24 hours a day on a pump. I don't think I want him on the wedge constricted for that long of time. It's nice that PT made him one especially for him... but I might request in is in it for just a little bit per day. PT also worked with him for about 5 min. I have not see child life work with Wyatt yet, so that will be my mission tomorrow... to meet them. The above pictures are Wyatt's cousins, Reed, Garret and their parents, Andy and Laura. Thanks for visiting him!!
Sunday, December 16, 2007
Good day for Wyatt
Today was a great day with Wyatt. His nurse was really nice, knowledable, and helpful. He was alert for most of the day. We played together in the bouncy seat, played peek-a-boo with my face mask, and read a few books. Good news... he is back to eating 40ml/hr after losing 4 oz. We also bumped into Wyatt's old neighbor from the NICU at Hopkins today.
Saturday, December 15, 2007
A visit from Wyatt's cousins!
Today was a nice day with Wyatt. His cousins came to visit... Reed, Garret, Laura and Andy. It was such a pleasant surprise!!! We also gave Wyatt a bath and spent a long time with him today. In order for the babies to be discharged the parents need to participate in parent education by watching 4 videos, taking a cpr class, and showing the nurse that you can take care of your baby by changing his diaper, taking his temperature, giving him a bath, etc... Benji and I thought we would knock out some of the requirements today and we watched 4 videos, gave him a bath, and changed his diaper. The videos were ok... car seat safety, RSV, SIDS, but then we had to watch a video on shaken baby syndrome and it was terrible!! We felt like we were in a court ordered parenting class for bad parents... something Britany Spears would have to attend!! In the background in the next room, a baby was screaming at the top of his lungs for the longest time. I heard through the grapevine, that babies with a high pitch scream are withdrawing from drugs that his/her mother did while pregnant. It' heartwrenching to listen to because I believe babies cry for a reason... it's how they communicate and they usually need something... food, love, security, etc... I'm an anti ferber method person and watching the shaken baby syndrome video while listening to a baby scream in the background was not fun!! I just wanted to take Wyatt home. Also, there seemed to be a miscommunication of docotors. Wyatt was stopped his feeds yesterday and was given pedilyte. He was suppose to start his normal feeding at 2pm today, but the weekend doctor did not want to make any changes. Wyatt started losing weight, so I did not want to keep him on just pedilyte through the entire weekend. So the weekend doctor wrote an order to feed him 25 ml an hour...(his normal is 40ml/hr). Hopefully tomorrow he will be back on the normal schedule or I will need to call the doctor. Apparently the weekend doctors hesitate to make any changes. I was not very happy about his miscommunication. Wyatt needs to gain weight and if he is spitting up a little, but still gaining weight it's ok... it's expected for cdh babies to spit up. The surgeon told us that it's important that he gains weight. Today's pictures will be posted tomorrow :)
Friday, December 14, 2007
Do you think Wyatt has enough mobiles?... 3
Today was a great day with Wyatt. I got to spend the entire day with him and it was much better than yesterday. Wyatt was a wake for a large chunk of the day and it was nice and quiet for most of the day. I showed Wyatt his window and we looked outside, Child Life and OT came by to work with him as well and I added a 3rd mobile for him. I think Wyatt wins for having the most mobiles in his crib. Can you tell I really want him stimulated!! Since his crib is huge, he will be able to see a new mobile from any direction. Today, the doctor thought he had a little bit of blood in his spit up so they put him on Pedialyte for the day and he will start eating tomorrow at 2pm. Everything is fine, the doctor believes that his ng tube poked his stomach. Usually, I would love snow over the weekend, but I hope it does not snow too much. I want to see my little boy!! We are so lucky, tonight when I got home, Wyatt's NICU nurses from Hopkins e-mailed to see how he was doing, there was a hot dinner at our door step (thank you Julia), and Benji's co-workers gave Wyatt a generous gift. Thank you everyone.... we are so lucky to have your support and prayers. Also, please pray for Wyatt's CDH friend Jack who is back in the hospital.
Thursday, December 13, 2007
The big move... again
Today we were moved from JHH NICU to Mt. Washington Pediatric Hospital. Wyatt was placed on a stretcher at 11:30am and took the 10 minute ride in the ambulance to MWPH. Mt. Washington is nice... it's on a quiet campus surrounded by trees, it's really small, and parking is free. The nursing staff is nice and they seem attentive to Wyatt. He will remain there until the surgeons make their decision on surgery in about a month from now. The only thing that I don't like, is that it seems loud... babies crying in cribs, people walking through the room talking loudly... I feel that Wyatt is in an orphanage. It's a nice hospital with good doctors and good nurses, but we just want Wyatt home in a nice peaceful, quiet environment, surrounded by people that love him 24 hours a day. Otherwise, Wyatt is great, he sleeps through anything, and is doing well. Thanks everyone for all your support and prayers. In the above pictures, Jackie, our primary nurse is holding Wyatt and is surrounded by the BEST nurses at Hopkins. You will also see that Chloe was sent home today with 3 pig tales, complements of our nanny, Lori!!
Wednesday, December 12, 2007
Wyatt is fine.
I knew today was going to be a good day when I found Chloe's shoe at the lost and found in the library. They were $46.00 Stride Rite shoes, so I was determined to find it!! Wyatt had a nice quiet day today. Today I realized that we are lucky to be at Hopkins. We have access to all kinds of specialists. The doctors came to the decision that maybe a small piece of the intestine did herniate up into the chest where the patch is located, but Wyatt does not need surgery immediately. This decision was made after several pediatric surgeons looked at the CT scan, radiologists, and a doctor who specializes in 3-D images. Since Wyatt is acting like his normal self, he will be getting transferred back to Mt. Washington at 10am tomorrow morning. He will remain at Mt. Washington until the NG tube is removed. After the holidays, Wyatt will return to Hopkins for the surgeons to exam Wyatt and afterwards a decision if Wyatt needs surgery to repair the hernia and place a G-tube in his stomach to eat will be made. Then when all this is done... we can finally bring Wyatt home. I'm not putting a time limit on it... but one day he will be home with us. I'm just taking one day at time. Until then, his home will be Mt. Washington where we will visit him every day and treat him as if were home... we are going to play with him, hold him, love him, hug him, kiss him, sing to him, read to him, etc... it will be our home.
What a day....
Today started out as a normal day. I took Chloe to storytime and then I started my trek off to Mt. Washington to see Wyatt. I should of known that it was not going to stay normal when I lost one of Chloe's shoes from the library to Lori (our nanny). As I was driving, I received a phone call from the doctor at Mt. Washington saying that Wyatt's chest x-ray is not normal. It looks like part of the bowel reherniated into the chest, so he is getting transported back to Hopkins. So I went to Mt. Washington to pick up all his stuff and met Wyatt back at the NICU at Hopkins. More chest x-rays were taken and the attending said it did look like it reherniated. The surgeons that did Wyatt's original surgery said that they looked at the chest x-ray and DO NOT believe that it reherniated!! This was great news because that meant no surgery and I trust our surgeons!! They were going to transport Wyatt back to Mt. Washington but decided to order a CT scan to make sure. Around 6pm the CT scan was done and it showed that the bowel did reherniate according to the attending physician and radiologist. It also showed that Wyatt has pneumonia in his upper right lung!! Pediatric surgery was paged to find out what to do. The surgeons looked at the CT scan and are still NOT convinced that the bowel reherniated back up into the chest. So tomorrow the radiologoist is going to "restructure" the scan to get a better look and hopefully the entire team of doctors can come to a concensus. What a yo-yo of a day!! Well find the answer out tomorrow. In the meanwhile, Wyatt is acting like his old normal self and when I got home at 9pm, Chloe's tummy was hurting her so she just finally went to bed at midnight. I need a hot bath and glass of wine!! Who knows where we will be tomorrow.... either at Hopkins or Mt. Washington.
Monday, December 10, 2007
One giant leap for Wyatt Koger
Today was a HUGE day for Wyatt. It was his first time being outside, his first time in a car seat, and his first time riding in a vechicle. We are so proud of his progress... he is such a big boy. Wyatt was transferred to Mt. Washington Pediatric Hospital- . It was sad to leave Johns Hopkins. It was the place where Wyatt was born, where he fought for his life, and where we made many friendships with other families, nurses, and doctors. Today Dr. Berkowitz and the nurse practicner, Kristen from the PICU came down to say bye to Wyatt. The exceptional nurse, Charla was his nurse today and helped us pack up for the journey. It's bitter sweat to leave, but we have to. Mt. Washington is a re-hab hosipital and a step down. It's a tiny hosipital and very different from the hustle and bustle of Hopkins. The parking is free and we can park next to the front entrance... much better than the mile walk to his room and it saves us from spending $90.00 a month for parking at Hopkins (and that's using coupons!!) and the cafeteria is cheaper. Wyatt is in a room (same level of the parking lot) with three other babies and one nurse. Wyatt's doctor will be his doctor through the duration of his stay, which is different from Hopkins where doctors rotated on a regular basis along with many residents. One difference which is a nuisance, is that anyone that comes in contact with the patients must wear a gown, mask, and gloves during RSV season, so that means all day long I have to look like an alein to Wyatt!! Washing hands was satisfactory at the NICU at Hopkins, but at this hospital, you look like you are prepared for war!! At Mt. Washington, Wyatt will have playtime every day with the Child Life staff along with occupational therapy and physical therapy. It is nice calm, quiet atmosphere, even though I would much rather have him at home. As of now, it is projected that he will stay there for one month, then go back to Hopkins for G-tube surgery and then home... we still have a long road a head of us, but we are making progress. We are so proud of our little boy and we are so thankful for all the doctors and nurses at Johns Hopkins for saving his life. We are also thankful for Wyatt's two friends, Jack and Drew. Best of luck to them in their families. They will be in our prayers.
Saturday, December 8, 2007
Big Sis' Snow Day!!
Chloe and I had a nice snow day together. It was the first time in two months that I did not go to Hopkins. It was weird to be away from Wyatt, but I called throughout the day and everything was fine. Jackie was his nurse and she took good care of him. Chloe enjoyed her first snowstorm, all day she looked out the window saying, "Snow." She also enjoyed getting pulled around our neighborhood in her sleigh. I thought she was super cute in her marshmallow snowsuit!
As of now, it looks like Wyatt will be transferred to Mt. Washington on Monday. Today he received his immunizations and RSV shot and tomorrow he will receive his head sonogram. It's bittersweet leaving Johns Hopkins. We have been there everyday since I delivered (expect for one day) and established many relationships with the doctors, nurses, other patients, and even the hospital priest! We want to thank everyone who cared for Wyatt... especially the doctors who were with him from the beginning, Dr. Berkowitz, Dr. Chandler, Dr. Fackler, Dr. Ruis and the nurses especially, Charla, Launa, and Jackie. The friends we met along the way, the Jensen Family, and Wyatt's neighbor, Drew. We also became close to other families while we were in the PICU. Today, we visited Wyatt's friend, Jack who is in the PICU. It brought back so many memories of the early days. Thank you for your prayers and support... we are very grateful.
Friday, December 7, 2007
Good Bye Hopkins...
We learned today that Wyatt will probably be getting transferred to Mt. Washington Pediatric Hospital. It's a step down from Hopkins and it's focus is rehabilitation. We'll miss everyone at Hopkins. He has received EXCELLENT care from all the doctors and nurses. The surgeons are not in a hurry to put in the G-tube because they want Wyatt to grow stronger and heal from his other two surgeries. He will remain on the NG tube until further notice. In a month, we will have another assessment of this vocal cords and take it from there. I am hoping to have him home soon, but it looks like he may remain at Mt. Washington for about a month. We are able to give Wyatt 10ml of milk a day and the rest through the NG tube. Two good things about being transferred... free parking and it's a little closer to our house. Every step we make is scary... I remember the feeling moving from the PICU to the NICU and now we are leaving Hopkins. Wyatt will be receiving his 2 month immunizations along with the RSV vaccine before we leave and I also requested another head sonogram to ensure that everything is stable. It's scary to leave... but I am so proud of Wyatt for being so brave and strong to be at this point.
Tuesday, December 4, 2007
Merry Christmas!
Everyday I stop by the same security desk when I enter the hospital and the same lady asks me where I am going and who is the patient and I tell her every day "NICU, Koger." She finally said, I should know this by now... but today she asked again :) Just a funny little story that I wanted to share. Today I gave Wyatt a bath and we removed all the wires and tubes to get him nice and clean. He was doing so well off the oxygen (high stating) that we kept him off for a couple of hours. Also, his nurse Charla and I got him dressed up in his Christmas outfit for his Christmas card pictures. I don't think he likes getting his picture taken... he would not smile for the camera! Wyatt had his swallow test today and it showed that he was aspirating some thick and thin liquid. Because of this, the attending physician will be discussing the next steps with the Pediatric Surgeons. They may have to place a G-tube (feeding tube) in his stomach for long term feeding, he is now unable to receive feeds from a bottle. One step backwards, and I really do not want Wyatt to go through another surgery. This means he will probably have to get intubated again (breathing tube) and pain medication. Keep your prayers coming!!
Monday, December 3, 2007
One
Wyatt seems to want one of everything... one normal lung, one carotid artery, and now one normal vocal cord. Since Wyatt was extubated (taken off the ventilator), he has a hoarse voice. The ENT doctor put a scope down Wyatt's throat and discovered that he has right vocal cord paresis, meaning the right vocal cord is slightly paralyzed, it moves a little bit. Because of this, Wyatt's airway is not protected and fluids can enter his lungs which can cause pneumonia. Tomorrow, Wyatt will be having a swallow test to find out if he is aspirating. Bottle feeding is suspended until the results of the swallow test. Check out this website to learn more- http://www.entnet.org/healthinfo/throat/Vocal-Cord-Paralysis.cfm Otherwise, Wyatt is looking really good, is alert, and seems to be very comfortable. He also had an Echo cardiogram today which is normal and his head sonogram shows that his head bleed is stable. I am trying to get Wyatt moving since he is alert and will be two months old tomorrow! To stretch Wyatt out, we play "How big is Wyatt... so Big!" He now weighs about 9 1/2 pounds! Calories and vitamins were added to his diet of breast milk. Many people are asking when he will be home. Once we know his airway is protected and his feeding is under control, he can probably come home on oxygen and the ng tube. Another possibility is getting transferred to Mt. Washington, a rehabilitation hospital owned by Hopkins. Thank you everybody!! Above is a photo of Chloe.. she is becoming such a big girl sitting at her little table in the kitchen coloring (her new favorite activity)
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