The Happiest Ever!!

Today Wyatt was the happiest that I EVER seen him. He was smiling all day long. Every time I showed him pictures of Chloe, Abby, and Sputnik, he would smile. It's so nice to see him have fun and be a kid! Today his feeds were started back up again 5 ml at a time. I just called and he is up to 10 ml. His goal is 32 ml/ 27 calories. I talked to the nutritionist and she recalculated his feeds to match his current age. Also, Wyatt had a cat scan and an exam by Dr. Carson today and everything looks fine. His soft spot looks great! The decided against decreasing the number of the shunt. He is currently 2.5 which is a slow flow and it seems to be working, so they are keeping it as is. I learned that he was suppose to go back to Mt. Washington tomorrow (Saturday) but the surgeon decided to change it to Monday. He would like to wait until Wyatt gets to his goal feeds. We were also talking about the central line. Wyatt will need to get that removed before he comes home. It has to be done at Hopkins in the OR under sedation. So it was recommended that he come back to Hopkins for clinic to get it removed before he comes home. I would rather err on the safe side and have it removed before we go home rather than on Monday. Overall, it was a good day!

Tube Free for a little bit

Wyatt on his way to the recovery room... for now he is tube free until he goes into the recovery room to get some oxygen. We have to wait a few more minutes... but I quickly got another a picture. The other picture is him resting in the recovery room. We are here for about 4 hours before a bed becomes available on the 6th floor.

G-Tube: A Success!!!

Well....they have the operating room blocked off for Wyatt until 11:45am. They started around 9pm. I asked Dr. Abduallah how long it would take and he said if there are no complications, just a few minutes!!! I thought he was joking, but I went downstairs to Children's admitting to pay our bill and admit Wyatt and when I came back up (just now), Benji said he is done!!!! Success!!! We have to wait 15 minutes to see him. Also, Mix 106.5 Radiothon is here all weekend raising money for the Children's Center and the PR lady asked me to share Wyatt's story on air!! So stay tuned for Wyatt to publicly thank all his doctors. I told the PR lady that I would be happy to do it, but Wyatt is in surgery now and I will come back down when he is finished. I always thought the radiothon was so depressing and in previous years and I would turn it off, but now that I am living it, I think it's inspirational to learn about all the little miracles in the Children's Center. I never would of thought that I would be "one of those families." The couple sitting next to me has a son in surgery now. Their son is getting his 30th surgery and he is a teenager. Wow!! You see and learn so much in the PICU. Also, Wyatt is looking forward to meeting up with his NICU buddy, Drew this weekend. Drew may be going home early next week and we hope the best for them. The picture above is Wyatt in the operating room before they put him to sleep. I got to be with him and give him a kiss before his operation. All the docs laughed when I pulled the camera out of my pocket to take a picture!!! You always have to be prepared with mom stuff no matter where you are!! He doesn't look too happy, but when he arrived in the OR he was really happy looking around. The bed is nice and warm and his head is on a cushion. He only started crying when he learned that it was him going to get the operation. The drugs they gave him worked in split seconds and he was out. Thank you again for all your support and prayers.... keep them coming!

The night before surgery

Today Benji spent the day with Wyatt while I worked. After work, I picked up my friend Whitney and we spent the evening with him. Tomorrow is a big day and if all goes well, getting a g-tube will be his ticket home. Our shift nursing was approved today, which is another step home. Dr. Abudallah, our surgeon told me that usually the GI doctors will put in a g-tube, but because Wyatt is high risk, he will be doing it. Dr. Abduallah and Dr. Chandler know Wyatt's anatomy the best. He is only going to try the peg method because it's not as invasive. For the peg method to work, Wyatt's stomach needs to be in the correct place and their should not be scar tissue in the way. If the peg method does not work, then the ng tube will stay in place and Wyatt will go home on the ng tube. Please keep Wyatt in your prayers and hope the peg method will work. Thank you.

Fun in the playroom!

I decided to flip my schedule around today and see Wyatt in the morning. When I arrived he was wide awake. I held him and he feel asleep in my arms. When he awoke, we read a few books and then it was time for him to go to the playroom. It was the first time I saw Wyatt inside the playroom and he loved it! His big eyes were looking all around and he just seemed so excited. I can't wait to see his expression when he comes home. I left for work and Wyatt stayed in the playroom for the next hour and half. Afterwards, PT worked with him and a volunteer held him for two and half hours. Benji will spend the day with him tomorrow during the day and I will go in the evening. Thursday will be Wyatt's big day- g-tube surgery.

A Wonderful Day with Wyatt

I am working this week so that I can be with Wyatt during his surgery. Thanks to my friends and husband who spent time with Wyatt today. Again, I know I say it over and over again, but we are soooooooooo thankful to our friends and family who are so helpful to us. It makes me feel good to know that Wyatt is getting attention when I can not be with him. Pam and Paula spent the day with Wyatt and when they returned, Pam sent me an e-mail...I hope she doesn't mind me publishing her e-mail, but it makes me feel so good, I thought I would share it-

"Paula and I had a lovely visit with the big guy today. He just keeps getting cuter and cuter. And he doesn't miss much of what is going on around him. He is busy watching everything! He especially liked being held up on the shoulder with us standing and swaying. It is so much fun spending time with Wyatt! But you already know that!!"

Benji is with him now, tucking him in. The only issue with Wyatt is that he is spitting up alot and is losing weight slowly. Please pray for Wyatt to stop spitting up, to gain weight and to let the peg method for g-tube surgery work.

Meanwhile, we have an awesome case manager, Jennifer who is arranging everything for Wyatt to come home such as an equipment company to supply Wyatt's equipment, home nursing, etc... it's so exciting!!! I think we are going to have a mini-hospital in our house.

Update- Benji just arrived home and said that Wyatt gained weight!!! Your prayers are working already. I added a few more blogs to my blog roll. It seems that baby Cadenne is on a similar track to Wyatt. She just got his g-tube and we are so happy that she is doing so well. We are also happy for baby Par who is home and happy!! Check out their blogs on the side bar. Finally, Baby Ned's blog is very inspirational. His parents have such a postive attitude and I gain strength from reading their blog.

Oh! I forgot some exciting news.. Wyatt's oxygen cannules were pulled off yesterday (he pulled them off) without anyone knowing. He was stating in 99-100 percent range before I noticed it!! I think he really only needs oxygen when he falls into a deep sleep. Thank you God!!!!!!!!!!!!!!!! Also, developmentally, Wyatt is holding his hands together and using his tongue more!! He tries to stick it out and attempts to have conversations with you.

Finally, I added a counter at the end of Wyatt's blog a few days after Christmas and it is now registering 6,350 hits. Wow!!! It's been almost two months since I added the counter and that' about 3,000 hits a month, on a average of 100 hits a day!!! I don't know if I even know that many people... but it just shows how many people care about Wyatt and are thinking/praying for him. I heard that Danielle's friends in Japan read the blog, my family from Italy, and CDH parents from Scotland and Bulgaria read it... Also a few nuns from two other states and my family and friends. Thank you so much for caring about Wyatt. We appreciate it.

Spending Saturday with Great-Grandmom

My grandmother is spending the weekend with us, while my sister is getting married TODAY in Japan (for her first wedding, a second one will be coming soon so that I can attend)!!! So Benji and I took shifts today and my grandmother and I went to the hospital in the morning and Benji went in the evening. Wyatt was happy and playful and then took a long nap today. No major changes and this is the first weekend in 3 weeks that he is on formula and not IV fluid!!! Wyatt is spitting up and losing weight...he now weighs just a little under 12 lbs. He lost about 1/2 lb in the past 2 weeks. His reflux medication was increased and hopefully this will help. Otherwise, Wyatt is as happy as can be.

Icy Friday!

Today Wyatt was dressed in his Raven's wear swinging in his chair ready to watch a football game. I didn't have the heart to tell him that football is over. Then he decided to study about Space while lying in his bed with his space sheet and book about astronauts. Then he decided to spit up and wanted to be naked. Then he took a snooze. While Wyatt was having an active day, Chloe was hanging out with her BFF, Lily and her nanny. Overall, it was a nice, quiet day! If you want to hear a story about just finding out your baby has cdh, read baby seth's carepage- http://www.caringbridge.org/visit/babyseth . Please keep them in your prayers.

Good Friends...

Wyatt had an eventful day today... here are some of his activities. Playing with Laura, reading books, swinging, playtime with phyiscal thearpy on the mat, putting his hands together, sleeping, smiling, and looking.













I am so lucky to have the best friends in the world. My college friend Laura visited Wyatt today while I could not be there. She even made cookies for all the nurses!!! When I joined her in the afternoon, she brought a yummy lunch from Panera. She also brought some books for Wyatt and Baby Einstein tapes. What are friends for??? Laura is busy herself... she is a mom of two young boys and works in an elementary school as a Professional Developer. Wyatt started to spit up brown formula today because he was scoped by the ENT doctor yesterday and today he decided to pull out his ng tube. I can't wait for the g-tube surgery!!! His prevacid, acid reflux medicine was increased today so hopefully that will help.... meanwhile... Chloe woke up with a fever of 102. I took her to the doctor and she has a double ear infection!!! Poor Chloe... she stayed healthy her entire first year of life and now it seems like she is getting sick everyother day!! Maybe because I am bringing stuff back from being in hosipitals all the time??

ENT visit at Hopkins

Today we packed Wyatt up and traveled to Hopkins. Wyatt was so cute in the ambulance. He kept looking around with his big blue eyes... it was so cute, I wish I had a video camera! It's kinda funny because Wyatt sits on a stretcher in a car seat and we just wheel him in the main entrance of the Outpatient Building, go up in the elevator, and it's just like a normal doctor's appointment but we are escorted by 3 paramedics and a nurse! The ENT doctor, Dr. Brown, looked in Wyatt's throat by putting a scope down his nose. He said that the right vocal cord does not move and the left vocal cord is fine. If it will correct itself, it will be between 9-12 months. Usually getting a shunt will help but it all depends on how the nerve was damaged. If it was just bruised, it's likely to fix itself, if it is severed, then it's unlikely it will fix itself. The right vocal cord nerve travels from the ear to the brain to the chest. It could of been damaged by the ECMO cannules (I think that's the cause), intubation, head bleed, or surgery. Wyatt's body will just adapt and the left vocal cord will hopefully take over. Wyatt will probably have a hoarse, raspy, sexy voice as he starts to talk. He is already cooing and he was very talkative to Dr. Brown. We will return in 4 months for follow up. Wyatt's feeds were started back today when we returned from the ENT doctor and Benji spent the day with him. Wyatt enjoyed watching the snow today and sitting in his swing. Pictures will be coming soon. Since this blog started, many people contacted me that also have cdh babies. One of those babies live in Bulgaria, her name is Lili. Check out her blog http://sdbg.blogspot.com/ The experiences of having a cdh baby in Bulgaria seems to be a little different than having a cdh baby in America. Lili is home and is doing very well. We wish them the best. My parents left for Japan today for 10 days to visit my sister and her fiance because.... they are GETTING MARRIED on Sunday. It's one of two weddings. Check out her blog- http://wanderlustinjapan.blogspot.com/
Please pray for safe travels and congrats to my sis Danielle... I wish I could be there!

It's a go for surgery!

This morning we buckled Wyatt in his car seat, loaded him into the ambulance and took him back to Hopkins for a clinic appointment with Dr. Abdullah, his surgeon. Dr. Abdullah examined Wyatt and said that he would like to do surgery next week to place a g-tube in him. He is going to try the peg method which is not as invasive as normal g-tube surgery. Bascially in laymen's terms, the surgeon will insert a tube with a light down Wyatt's mouth to his stomach. The light will shine through his skin and the feeding tube will be placed. It's much more complicated than my description and Dr. Abduallh's explaination sounds fanicer than mine. I have to say, Wyatt has the coolest surgeons in the world. Dr. Abdullah and Dr.Chandler are so nice and understanding and they make everything sound so easy. They take their time with Wyatt and have our interests in mind. They always say that the parents know best and include us in all their conversations. If the PEG method does not work (since Wyatt's stomach may be hard to get to) then he will go home on the ng tube with a night shift nurse until we can bottle feed. Mt. Washington just called while I was putting Chloe to bed and said that Wyatt is now on IV fluids since he just spit up brown coffee grinds which means old blood... probably from the ng tube scraping the lining of his stomach.... boy do we need the g-tube!!! Because of him going on and off of IV fluids, Wyatt lost 1/2 pound and now weighs exactly 12lbs. Also, the Dr.Abdullah and Margy, PA is in agreement that Wyatt needs to taste something other than yucky reflux spit-up, so it is suggested that Wyatt's pacifer is dipped in tasty formula so he can begin to associate taste to be something good and not bad spit up all the time.

Also, today Wyatt's CDH friend Jack was in the newspaper. He is a superstar!!! Jack's parents are organizing a blood drive on March 31st which is CDH Awareness Day from 2-8pm. Click here to read the article- JACK's Newspaper article Jack's article reminds me so much of Wyatt. They have the same doctors and I can relate so easily to what Vicki said about her son Jack, his doctors, and his experience at Hopkins. We are so happy that Jack is doing so well!!

In other CDH news, baby Ned had a successful heart surgery and came off the vent for a few hours today!! Ned's mom description of holding her child for the first time is very touching. I can relate and remember the feelings I had, which were similar when I held Wyatt for the first time (which is captured on video camera). Click here for Ned's blog.

Also, Baby Liviana came home today for the first time ever!!! I can't wait to have the feeling of everyone under one roof... I hope soon to relate. Click here for baby Liviana blog.

Reading about other CDH babies shows me how far Wyatt has come. We are so lucky and fortunate. What a blessing Wyatt is to us...our lives are so much richer because of him.

ps- Thank you McDaniel College... we appreciate your thoughtfulness.

President's Day

Wyatt has a nice day today. His feeds are back at 27ml/hr and 27 calories and he seems to be tolerating it well with formula color spit up every now and then
:) Today was President's Day, so I spent the day with Chloe and my grandmother and my friend Paula spent the day with Wyatt. After my mom came home from work, she watched Chloe and I spent time with Wyatt. Today was a long work-day for Benji... in fact he is still at work!! Tomorrow is a big day for Wyatt, we are meeting with his surgeons to formulate a plan and discuss g-tube surgery which could possibly be on the 28th. Please continue to keep Wyatt in your prayers.

Same as last weekend!!

Well it's the weekend, and guess what that means... Wyatt is on IV fluid and then pedilyte for the weekend (same as last weekend). Wyatt had a chest x-ray today and blood work and everything is fine. He will probaby loose weight and then we are back to square one again. On Friday, Wyatt decided to pull out his ng tube and so it was replaced just like last Friday. Wyatt has been spitting up alot lately and he continued to spit up but it was a brown color which means something is bleeding, probably from the ng tube poking it. When Wyatt returned from Mt. Wash after the shunt surgery, his feeds were increased from 27 calories to 30 calories, then glucose was added so now it's 32 calories. The volume was increased from 27 ml/hr continuous to 28 ml/hr. Well... I think increasing the calories is making his stomach very upset. He spits up about once an hour since his surgery. I know it's not the shunt causing the spit ups, because when his feeds are stopped on the weekend, he does not spit up. The doctors at Hopkins said 30 calories is a lot and they would not go above that. Also, Wyatt's friend Jack's mom was also told the samething by the GI docs at Hopkins. I am going to request that Wyatt goes back to 27 calories where he was happy and gaining an ounce a day. We have a busy week ahead of us... Tuesday is the clinic at Hopkins with Wyatt's surgeons. Wednesday we go back to Hopkins for clinic with the ENT doctors and surgery for g-tube is scheduled for the 28th. I am actually looking forward to g-tube surgery so we can say good bye to the ng tube and bring Wyatt home. Wyatt says thank you to his friend Jack for the Valentine :)))

Happy Valentine's Day!

Did I ever share the story of my singing? Well... I am a terrible singer, I sing off key and just don't have the talent of music, eventhough I married a muscian. Well, ever since Wyatt was born, I would sing the Itsy Bitsy Spider to him. When he was parayalzed and sedated on ECMO, I would always start my visit my singing the spider song to him, so he knew his mom was by his side. Well, today I sang him the spider song while he was sleeping and he smiled in his sleep!! Then I proceeded to sing other songs and he continued to smile. I think Wyatt and Chloe are the only two people on this Earth that really enjoy my singing. I hope they stay that way!! Wyatt has been spitting up more often now, so the GI doctor came in to exam him. He put him on pedilytle for 4 hours, gave him medicine to coat his stomach, and took away his mobility medicine. I also just learned that Wyatt is on 32 calories, which could also be the cause of his spit up. Otherwise he looks comfortable. We had a family meeting with the major players in Wyatt's care today. It looks like if g-tube surgery is a success, then Wyatt will be able to come home a week or two after surgery. We discussed equipment companies for when he comes home, shift nurses, and nursing visits. He was happy today and enjoyed his Valentine's Day. On the otherhand, Chloe's stomach was upset today, so I got her antibiotic changed for her ear infection. My friends Whitney, Amy, and Lori saved the day today... what would I ever do without friends? Whitney picked up Chloe's prescription for me while Benji was with Wyatt and I was with Chloe, she then brought wings over for dinner and Benji, Whitney, and I had a nice V-day dinner together! Amy watched Chloe for us while we were at our family meeting and Lori, our wonderful Nanny stayed with Chloe during her upset stomach and comforted her like a mom would. Thank You!!

We got a plan!

Today I had the perfect day with my two kids. In the morning, I took Chloe to story time at the library and it was all about bears. She loved it! Then I voted and off to the hospital I went! It was snowing and if you know me, I dislike driving in the snow. I'm terrible at it... that's why I am a teacher (that's not really the reason). I must really love Wyatt to drive in the snow. I think my friends tired him out yesterday, because Wyatt took a long nap in my arms. Today he enjoyed time in the playroom and OT worked with him as well. When Wyatt woke up from his nap, he was all smiles and very playful. His incision looks good and dry. I think the accreditation committee was visiting Mt. Wash today, because when I arrived EVERYTHING was under his crib... all his signs, stuffed animals, raido, blankets to "prevent infectious diseases." Wyatt also has a "precaution sign" hanging on his crib. Nonetheless, we had an enjoyable day together. We also established a plan... we have a family meeting with the folks at Mt. Wash on Thursday, we have a clinic appointment with Wyatt's surgeons next Tuesday at Hopkins, and g-tube surgery is tentatively scheduled for Feb. 28th. After that, he will return to Mt. Wash for a couple of weeks and then HOME!!!!!!!! I don't want to jinx myself, but it was exciting to hear our case manager talk to us about an equipment companies that will give us our supplies at home and a possiblitiy of a shift nurse at night.

Thank goodness for friends and family

Today I worked all day, so thanks to my wonderful friends, Pam and Paula who spent the entire day with Wyatt. I appreciate it so much!!! Benji is with Wyatt tonight. Wyatt's feeds are back to normal and he was happy today. No major changes. My mom took Chloe to the doctor today for a runny nose that she has had for a while. I didn't really think she needed to go...but moms are always right... Chloe has an ear infection!!! She is on antibiotics and seems to feel better. Thank goodness for my friends and family... they really helped out today while I was working. Thank you!!! I really missed my little guy today.

The many faces of Wyatt... All smiles!

Eventhough Wyatt has been smiling for a while, this is the first smile captured on camera! What a miracle and such a blessing to the world!






The incision on Wyatt's abdomen that the docs are worried that it may be infected...

Happy today!

Wyatt looks very happy today... I think I know why. He has a nursing student, Carla that has been giving him one on one attention all day, holding him, playing with him, and taking good care of him. His feeds are starting back up today as well. The incision on his abdomen is a little more red and puffy. To prevent an infection, Wyatt will start antibiotics. His stitches are a little loose and they are disolvable, so we have to be careful not to get them wet. He was also given Tylenol for any pain today as well. I really like Wyatt's doctor today... he called the neurosurgery team at Hopkins to get a second opinion... thank you!! I'm still at Mt. Wash taking a little break since Wyatt is napping.

Happy 4 month birthday Wyatt

Wow! I can't believe how much my little guy has grown and what he has endured in the past 4 months. Today was a little different than a normal Saturday. My mom stayed with Wyatt during the day while we took Chloe to a birthday party. I enjoyed giving Chloe that extra attention and spending time with her. Sometimes I think to myself that she is growing up before my eyes and I can't forget about that!! We went to the hospital around 5pm to spend time with Wyatt. Wyatt had a good day... he is still on oxygen. He also got a new ng tube, therefore, he started spitting up dried up blood. The doctor on call took away his feeds and started IV fluids. Otherwise he is fine. Happy Birthday Wyatt.... You have accomplished so much!

Back on oxygen....

When I heard Wyatt was off oxygen yesterday completely, I was a little surprised.... I wanted to take things slow and let his body heal from his surgery without adding any stress to him. He is currently on 1/8th liter which is the lowest setting and I am ok with that. Maybe before he gets home, we can wean him off slowly. Last night when I called the nurse before I went to bed, they had to put Wyatt back on oxygen, because when he feel into a deep sleep, he kept falling below his 94 oxygen limit. I am glad the nurse made that decesion! Thank you!!!

No more oxygen!!

I never thought this day would arrive, but it did.... Wyatt is off oxygen and is doing just fine!!! When Wyatt was born, we would not have survived with out oxygen. He endured ECMO, ocillator, ventalator, CPAP, Oxygen, and now... NOTHING!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! One less tube. Well, it looks like we have a plan. We will be seeing our surgeon, Dr. Abduallah in two weeks in clinic and then possible G-tube surgery. The G-tube surgery is scheduled, just in case we do it. It looks like he will get a G-tube and this will get him home faster!! Today, I worked, so my Dad spent the day with Wyatt, then after work, I played with Chloe until bedtime, put her to bed, and then went to the hospital to play with Wyatt, and then came home to blog... just call me supermom!!! No, actually my mom is supermom--- she watches Chloe, cleans my house, spends time with Wyatt, made dinner for us tonight, does our laundry, and she even works full time (actually more than 40 hrs a week)!!! She is supermom!!

Back to Mt. Washington

Today we moved back to Mt.Washington. A solid plan has not been established yet, but I was told he will return back to Hopkins for G-tube surgery in 2-3 weeks. The doctor who performs the swallow study would like to wait a while because she said with Wyatt's high respiratory rate, he would not pass. The PA for neurosurgery, Judy showed me a model of Wyatt's shut. Here are some fun facts- the tubing is coated with antibiotics that will last for 3 months. It's programmable by putting a magnet on his head. Wyatt's cry is a little louder and he seems happier. We could not be happier for him!!!

Drain fluid drain!!!

I am sitting by Wyatt's bedside and he is sound asleep. He was moved across from the nurses station close to the hallway and I feel REALLY GOOD about that. I heard that he may move to Mt. Washington tomorrow. Wyatt is doing really well... his soft spot on his head is a little softer and it's not as swollen. The shunt is working and fluid is draining!! Dr. Lefton-Gref would like to wait a few more weeks for the swallow study because she said he will do better if we wait until he is fully healed. I know it seems like we are getting bounced back and forth from Hopkins and Mt.Wash with out a plan. I hope to formulate a plan tomorrow!! While I was sitting here, the cleaning lady from Hopkins stopped by to visit Wyatt for a good 20 minutes and said that she is praying for him. Isn't that amazing... Wyatt has touched so many lives... even strangers. Wyatt's feeds are back to normal and he seems to be tolerating them.

Winning the lottery...

I was rocking Chloe to sleep tonight and was thinking... I won the lottery...here I am holding my beautiful, happy, smart, daughter and Wyatt is resting peacefully in his bed. Wyatt was given a 50/50 chance and he has made a huge impact on many lives already in just four months- what an inspiration he is to me and everyone that surrounds him. Today's surgery was a success because of the strong fight for life that Wyatt gives every day and the support of all our family and friends. Benji and I got home around 8pm, Benji ate dinner and took a shower, and then drove back to Hopkins to spend the night with Wyatt since he is in a room all by himself, at the end of the hallway in a corner (can you tell I thrilled about that?) So tonight, the girls are having a sleep over (me and Chloe) and the boys are having a sleep over (Benji and Wyatt). Tomorrow I am going to work all day and then spend the night at Hopkins with Wyatt. As a side note, two teachers from Winfield Elementary gave me Dr. Carson's book to get autographed. When Dr. Carson checked on Wyatt this evening, I asked him to sign the books and told him that he is very popular in Carroll County Public Schools and that many students read his book "Gifted Hands" in school and that Cranberry Elementary has a room named after him. It made him very happy and he was impressed. He then shared two stories with me at Wyatt's bedside- how cool!! Thank you everyone for everything! Good night!!!

I'm really not a computer geek... but here are more pics!

I am just a proud mama!!

Recovery Room


Benji working... can you find Wyatt? - 6th floor


Wyatt in the recovery room shortly after surgery


Most recent pic on the 6th floor- sleeping soundly so that's why I am on my computer!

Updated Update...Super Tuesday

Recovery Room



When we went into the recovery room just about 20 minutes after surgery, Wyatt was wide awake and extubated!! (the breathing tube removed). He was a little fussy, so the nurse gave him some pain medication and then he took a nap. We waited in the recovery room for a long time because all the beds were full on the 6th floor- yes, I said the 6th floor. It was orginally planned for Wyatt to go to the PICU after surgery, but he is doing so well, that they moved him to the 6th floor. Moving to the 6th floor is great, but since all the beds are full, we are at the very last room at the end of the hallway in a corner. No one can see Wyatt and if we leave, he is all by himself in a corner at the end of the hallway. Wyatt has a quiet cry and can aspirate- it's not safe for him to be out of view from a nurse. I requested our old spot back or one similar to it, so hopefully when beds become open, we can move. Our next step will be to meet with his doctors to discuss what's next for Wyatt. He will need a swallow study done and we will have to determine if he needs a g-tube. I am hoping to meet with the GI docs to formulate a plan. Wyatt is sound asleep now and looks good. Guess who Wyatt's neighbor was in the recovery room? His neighbor from the NICU back in November!!!! I think Wyatt and Drew just wanted to hang out together and they planned this meeting!!!

Update

Dr. Carson just came out to the waiting room to talk with us and .... SUCCESS with a Big Smile! He was able to find a nice spot in his abdomen for it to drain, under some scar tissue on the right side. The valve is programmable
(amazing!!) and it's set at a low setting so it will begin to drain slowly. Wyatt will be coming out in the next 10 minutes or so and then we have to wait a little while to see him.

Pre-Op