Wyatt James Koger, A Fighter from Birth: Improvement

Monday, May 20, 2024

Improvement

Today was low key, we were removed from two teams today- the pain team and the infectious disease team. He is still getting all the antibiotics and pain medicine but Wyatt is stable in those departments so the PICU team will take over. Today his cerebral spinal fluid (CSF) was tested compared to five days ago. A dramatic improvement! White blood cells from 146 to 2, red blood cells from 28,000 to 744 and the color is much more clear. This means the infection and inflammation is healing in his brain.

We still have a ways to go, but heading in the right direction. Today Wyatt laughed for the first time- huge belly laugh! I was so happy- crying for joy! He is still dealing with headaches, shortness of breath and arm pain but hopefully those symptoms will decrease.

Some of the things I am proud of Wyatt- he is an excellent advocate for himself. He asks his nurse about medications, keeps track of what should be given at certain times, asks for things he needs. Yesterday we had an inexperienced nurse and he told her to to please get help before moving him. He asks so many thoughtful medical questions. (He is exceeding me!). Slowly but surely!

May 15 vs May 20th- dramatic improvement!

While Wyatt is hanging out in the ICU- Chloe jumped into her school pool with her uniform!

Just adding a few cute photos that showed up on my FB memories today!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.