Wyatt James Koger, A Fighter from Birth: Breaking Out!

Monday, June 3, 2024

Breaking Out!

We broke out and went to the courtyard to visit the Koi pond! Ortho and Neurosurg signed off today- cleared us for home! MRI last night was unchanged which is good. However, Wyatt decided to stop eating because food got stuck in his throat and it was a scary experience. As a result he had a swallow study today- it showed normal swallowing but when food travels down his esophagus, it may have a retrograde flow. All this means that he has to drink more and bite his food in smaller sizes. He is still not eating a single thing though for the past two days. Hopefully he will start eating. Looks like we are going to outpatient intensive rehab at KKI as our next steps. Wyatt was so brave today. He had this big sticky bandage ripped off from his head today which pulled off a big chunk of hair. I can’t imagine the pain.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.