Wyatt James Koger, A Fighter from Birth: Post Operation

Thursday, October 25, 2007

Post Operation

Wyatt is staying strong. Today was a calm day. Wyatt seems to like the slow and steady course. His stats were stable today.

He is currently on a oscillator that gives him 600 breaths per minute. Wyatt's problem is that he tries to breath on his own when he is not allowed to on the oscillator. He is sedated, but the doctors are having difficulty finding the correct sedation for him because he is so alert!! The doc's said he has enough sedation to knock out a horse, but Wyatt seems to wiggle around, moving his toes, feet, hands, arms, and opens his eyes. Maybe I just talk and sing to him to him too much??? The nurses have to tell me to stop stimulating him!!

Today he was calm and we both followed orders!! His next step is moving to a ventilator. They tried to start the process, but Wyatt was not ready to move on to the ventilator yet. We are hoping for him to use the ventilator soon.

Also, the doctors take a sonogram of his head every day and today they found an Intraventricular Hemorrhage in a ventricle in his brain. Out of four grades, it's rated grade 1/2 which is minor. We are hoping it will stay this way. We have to pray for two more things before he is out of the woods.

1. Moving on to the ventilator
2. Good head sonograms

The pediatric intensive care is such a special place, full loving and caring parents that sit by their children's beds for hours upon hours. Hopkins is the only place that will do heart surgery on infants. Most babies that I have met went through heart surgery, like Wyatt's roommate and friend little Christopher.

Yesterday, a little 5 year old girl, Victoria woke up from sedation for the first time in a few weeks after heart surgery. I witnessed her dad, who is a huge Baltimore City Police Officer, embrace her and cry his heart out of joy, and then hugging his wife still crying full of happiness.

Also, I look forward being with Chloe. Today is the first day I saw her since Sunday evening. She is my little medicine. She is always in a great mood.

Thank you for the support.

Gina

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.