Wyatt James Koger, A Fighter from Birth: Eating more...

Tuesday, November 20, 2007

Eating more...

My sister is a gifted writer and she recently added a comment on the blog that was very touching. She said, "Wyatt, I really enjoy your blog. My past time is to start at the bottom and scroll up. It is proof of the miracle God performed on you. Given your strong fight for life, I can only imagine what you will be when you grow up." Wyatt is making a difference in this world already and we are so proud of him. Wyatt's feeds are now increased to 22 ml per hour. When we reach 28 ml per hour, he will reach his maximum feeds... we are almost there. He also had a CT scan of his head today and we will receive the report tomorrow. His daily head measurements have not changed and he is not having seizures... all good signs! Wyatt still has fluid, but is getting suctioned less. Because he is weaned off his narcotics, he his much more alert, so to keep him busy, we hold him, put him in his bouncy seat, and a swing. He loves looking around. I want to say thank you to my good friend from college, Laura came to visit Wyatt over the weekend.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.