Lucky

Our family is lucky to have excellent care for our son and a wonderful support network of family and friends. We have so many people to thank. A new team of doctors, Dr. Lawson (Director of NICU) and his team, will be caring for Wyatt for the next three weeks (they rotate every 3 weeks). We want to thank Dr. Gilmore, Neonatologist, and her team of fellows and residents for caring for Wyatt for the past two weeks. With their expertise, he was able to get off the ventilator, CPAP, and have a great decrease in his pain medications. He also started eating. We also like to thank our pediatrician, Dr. Goldstein, who goes over and beyond his call of duty. He regularly checks Wyatt's progress and calls us at home. Wyatt's doctor who placed in on ECMO in the PICU, Dr. Berkowitz, Director of ECMO still checks in on him, even though Wyatt is no longer his patient. Today, I requested to talk to a neurosurgeon and he called shortly after from the operating room to answer my questions!! Wyatt's surgeon, Dr. Chandler checks in on him everyday too and is super sweet! The nurses are wonderful too... they go the extra mile with Wyatt. Most importantly, our friends and family that e-mail, call, make us lunch, and offer to help. People that we have not talked to in years are contacting us as well as complete strangers. So many people are offering to help and the only help we need is your prayers for Wyatt. Thank You!!!!!! We are lucky.

Wyatt is doing great! His feeds are now 6 cc's every hour and he seems to be keeping it down. His hydromorphone (narcotic) is down to 6 (from 45). Wyatt still has fluid around his lungs which is making his respiratory rate higher than normal... so he breathes faster than normal. The wound in his neck from ECMO is healing slowly. It looks really gross!! It is still open about 1 cm, but the surgeons reassure me that it is going to heal. A wound nurse examined him today and placed a different type of dressing on it to accelerate the healing process. His head sonogram showed no major changes. It showed that some blood is getting absorbed (which is good!) and also showed some diliation in the ventricules (which is not good), but it's not too major and his head size is not increasing so the neurosurgeons are not worried.
Overall, it was a nice calm day.