Wyatt James Koger, A Fighter from Birth: The Simple Things in Life

Friday, November 2, 2007

The Simple Things in Life

Today was a great day with Wyatt.... well every day is, but today we felt like we have a newborn baby. We changed his diaper, rubbed lotion on him, and best of all, we were able to hold him for the first time for two hours. It was incredible! Many parents take holding a baby for granted, but we were waiting for three long weeks for this to come. Wyatt was so happy and comfortable in our arms.... but I think we were more happy!! Just to wrap our arms around his body and whisper in his ear, and pat his little butt is something we will never forget. We have experienced so many exciting things in our life, but this topped it all! We are so grateful for your support and prayers.. which got us to this moment. We have video and pictures to prove it. It was truly a memorable day. The nurses said that maybe on Monday, he will start eating.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.