I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Monday, December 31, 2007
Happy New Years
We wish everyone a happy, healthy, new year. I am looking down at the clock on my computer and it's an hour before midnight and what am I doing??? I'm blogging!!! It just goes to show you that it sure has been an unusual year! This year our family is in three different places. Wyatt is in the hospital, Benji is at home, and Chloe and I are at my parents. Our wish for the next coming year will be to be together as a family under one roof!! Luckily Wyatt slept for most of the day because he was moved from the annex to room #1 with a child who needed a lot of care. Then Wyatt was moved to room #3 which was his third change in one day. I was getting ready to leave to put Chloe to bed and Wyatt started de-stating with his oxygen saturation levels. His chest x-ray today showed that either his left lung collapsed or it's filled with fluid, therefore it's difficult for him to breath. However, we got him stabilized and when I was leaving, he was sound asleep and stable. If all stays calm, he will most likely be moved to the 6th floor at Hopkins and we'll probably stay there for a while. The 6th floor is a step down unit for pediatric patients. Wyatt's other surgeon will come back on Wednesday and then a plan will be formulated. Happy New Year everyone and thank you for everything. A mom from Scotland e-mailed me her son's blog who also has CDH. Check it out at It's a small world!!
Subscribe to:
Post Comments (Atom)
1 comment:
Geez, that boy keeps you on your toes. I'm so glad Nicole was able to finally get a line for Wyatt. I can't believe he had to get the IO. Jack had that at his bedside for emergencies since he is now considered a "difficult stick" or as I say "picked over". That needle looked so scary. Wyatt sure is a brave little guy.
His picture on the blog (top right) is great. He looks like he put some weight on. I want to pinch those cheeks!
I hope this week things will settle down and they'll get him healthy again. I know with the PICU staff Wyatt is in excellent hands. Just take care of yourself. That is such an intense environment. If you need anything at all just give me a call. James works in Baltimore so he could easily swing by to bring you something (food, supplies, etc). You can also check out The Children's House if you live far enough away. Then you'll just be down the block.
I hope Benji gets well soon too. I'm sure he misses seeing you guys!
Take care!
Hugs,
Vicki
Post a Comment