Wyatt James Koger, A Fighter from Birth: Mom-mom and daddy visits Wyatt

Tuesday, December 18, 2007

Mom-mom and daddy visits Wyatt

Today was the 2nd day since Wyatt was born on Oct. 9th that I did not visit. It's terrible not to see him, but he was in good hands. My mom spent the entire day with him and Benji will spend the evening with him. Today PT made a reflux wedge for him to lay in. My mom says it's looks like he is in a bucket and the order is to have him in it while he is in bed. So I asked the doctor to wait to put him on it until I see it. Wyatt is always in bed expect when we hold him because he gets feed 24 hours a day on a pump. I don't think I want him on the wedge constricted for that long of time. It's nice that PT made him one especially for him... but I might request in is in it for just a little bit per day. PT also worked with him for about 5 min. I have not see child life work with Wyatt yet, so that will be my mission tomorrow... to meet them. The above pictures are Wyatt's cousins, Reed, Garret and their parents, Andy and Laura. Thanks for visiting him!!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.