Wyatt James Koger, A Fighter from Birth: The true meaning of Christmas... Wyatt and Chloe

Wednesday, December 26, 2007

The true meaning of Christmas... Wyatt and Chloe

The past two Christmas' we received the best gifts of all.... Wyatt and Chloe. This Christmas we had family visiting and the big holiday dinner at our house. We went to church on Christmas Eve and Chloe was a little angel. On Christmas morning, we opened gifts with Chloe and the family and then spent the afternoon with Wyatt. Wyatt was in a great mood for his first Christmas. I think he really enjoyed us video taping every minute. He's such a ham!! The hospital decorated two large shopping bags with gifts (thank you!!!) for him and he had a stocking of presents from Santa hanging on his crib. He also enjoyed all the visitors that came to see him on Christmas day. We organized shifts so someone would be with him for most of the day. He was happy and alert the entire time.
From the medical standpoint, Wyatt stopped vomiting dried blood and remained on IV fluid. This is helping his GI tract heal, but as a result, Wyatt lost some weight. Today he was placed back on pedilyte. We have to find out what is causing him to vomit blood. It seems to occur every weekend. Could it be the ng tube, could it be his medication... sodium, iron, prevacid, flovent, mobility med???? All I know is that Wyatt was sent to Mt. Washington to get stronger and gain weight before his possible g-tube surgery and we have not accomplished it yet. The problem is that Wyatt decides to vomit blood when his doctor is off... it' Christmas and Wyatt has had a different doctor everyday since Saturday and when a doctor is filling in, they don't like to make changes.... so Wyatt has been on fluids/pedilyte for several days. The nursing staff has been extremely nice, however, the nurse today told me that the VP of the hospital called her and said that I had to remove his mobiles because they can collect dust. I said I would be happy to clean out his crib and remove some of his stuffed animals and clean the mobiles everyday, but the mobiles are staying and I will be happy to talk with the VP directly. I have an almost 3 month old alert baby laying in bed at a hospital all day starring at a metal crib and white walls with OT, PT, and Child Life coming 2x a week each working with him for about 30 minutes. I'm about to go back to work and I am not about to take away the things that he loves to look at throughout the day. If the mobiles disappear, then I will bring a cot and live in the hospital next to his bed!!! How can a stranger walk by his crib and say this without knowing Wyatt and his personality? Sometimes I hear kids cry for 1/2 hour and I am not going allow that with Wyatt. He needs to feel like he is at home, happy and secure. Thanks for letting me vent... can you tell I'm a little upset by this???? Otherwise, Wyatt had a wonderful first Christmas and we enjoyed sharing it with him. We experienced the true meaning of Christmas...witnessing the support from our family and friends and thanking God for Wyatt. He is so very special.

ps- we got a new home phone number. If you don't have it... e-mail me at gbkoger@yahoo.com and I'll give it to you.

1 comment:

Anonymous said...: The staff including the VP needs to treat the babies as if they were their own. Would they want their child staring into space except for 2.5 hours a week?; December 28, 2007 at 1:13 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.