Wyatt James Koger, A Fighter from Birth: A visit from Wyatt's cousins!

Saturday, December 15, 2007

A visit from Wyatt's cousins!

Today was a nice day with Wyatt. His cousins came to visit... Reed, Garret, Laura and Andy. It was such a pleasant surprise!!! We also gave Wyatt a bath and spent a long time with him today. In order for the babies to be discharged the parents need to participate in parent education by watching 4 videos, taking a cpr class, and showing the nurse that you can take care of your baby by changing his diaper, taking his temperature, giving him a bath, etc... Benji and I thought we would knock out some of the requirements today and we watched 4 videos, gave him a bath, and changed his diaper. The videos were ok... car seat safety, RSV, SIDS, but then we had to watch a video on shaken baby syndrome and it was terrible!! We felt like we were in a court ordered parenting class for bad parents... something Britany Spears would have to attend!! In the background in the next room, a baby was screaming at the top of his lungs for the longest time. I heard through the grapevine, that babies with a high pitch scream are withdrawing from drugs that his/her mother did while pregnant. It' heartwrenching to listen to because I believe babies cry for a reason... it's how they communicate and they usually need something... food, love, security, etc... I'm an anti ferber method person and watching the shaken baby syndrome video while listening to a baby scream in the background was not fun!! I just wanted to take Wyatt home. Also, there seemed to be a miscommunication of docotors. Wyatt was stopped his feeds yesterday and was given pedilyte. He was suppose to start his normal feeding at 2pm today, but the weekend doctor did not want to make any changes. Wyatt started losing weight, so I did not want to keep him on just pedilyte through the entire weekend. So the weekend doctor wrote an order to feed him 25 ml an hour...(his normal is 40ml/hr). Hopefully tomorrow he will be back on the normal schedule or I will need to call the doctor. Apparently the weekend doctors hesitate to make any changes. I was not very happy about his miscommunication. Wyatt needs to gain weight and if he is spitting up a little, but still gaining weight it's ok... it's expected for cdh babies to spit up. The surgeon told us that it's important that he gains weight. Today's pictures will be posted tomorrow :)

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.