I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Sunday, December 23, 2007
Wyatt likes to give his mom gray hair!
Today Benji and I took shifts to be with Wyatt. Benji had the morning shift and I had the afternoon/evening shift. My shift started early with a phone call from the doctor. Wyatt's spit up looked like coffee grinds which indicates dried blood. So all measures were taken... stool sample, stomach contents sample, and blood work. His blood count came back alarmingly low, so the weekend doctor called Wyatt's Hopkin's surgeons to see if he needed to go back to Hopkins. The transport team was on standby to pick him up. The surgeons recommended another blood sample be taken before he was transported to make sure it was not a mistake. Well guess what... his blood work came back fine and he stays at Mt. Washington for now. This happened last week too... In my "mom" opinion, Wyatt gets a new ng tube every Monday and dried blood is found in his spit up on the following Friday/Saturday. I think maybe the tube is poking his stomach??? who knows... but I really want Wyatt to stay put and get nice and strong and healthy!!! Danielle, Wyatt's nurse was extra special nice to him today since he had to go through so much. Wyatt is such a trooper and is acting like his normal self.
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2 comments:
Benji and Gina,
I'm so glad it was a false alarm and Wyatt is OK...
Hope you have a chance to get some relaxing in for Christmas. Sure would be nice if Wyatt could come home, even if just for the day...
Take Care, and Merry Christmas!
Julia
Geez Wyatt, you're going to start giving me gray hairs too if I have to worry about you and Jack does a good enough job of that. I hope everything is OK. Good thing Hopkins had them re-draw the bloodwork. Is Wyatt on prevacid? Jack had spitups that looked blood tinged (more red/pink though) and other moms told me it was b/c of the prevacid. I think your idea about the NG tube could be right too. I know they have some that are softer and some harder. Maybe if they're using a harder one it's poking him. That makes sense. Gosh-I hope it all settles down and you guys have a quiet Christmas. We're all praying and sending positive thoughts that Wyatt will get home soon. I'm also happy to hear you're getting help from family at home. Every little bit helps!
Merry Christmas and remember we're always thinking of you guys!
Vicki, James & Jack
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