Wyatt James Koger, A Fighter from Birth: New Room, Brain surgery, and no swallow study

Monday, January 14, 2008

New Room, Brain surgery, and no swallow study

Today my mom and dad spent the day with Wyatt since Benji and I were unable to. One of us will go after Chloe goes asleep. The swallow study was postponed until Wyatt starts showing that he can handle his feeds. The feeds were started at a low rate today and will increase slowly. Wyatt is congested so he got a chest x-ray and was tested for RSV. Dr. Carson just came by while my mom was with. Somehow Dr. Carson makes everyone feel good, because my mom called very happily. Wyatt's ventricles are getting larger and after he is more stabilized, he will need a shunt in his brain. Dr. Carson said many athletes and happy, healthy people have shunts. He said Wyatt is fine for now, and will keep on checking up on him until brain surgery. It looks like Wyatt will be in the hospital for a while now. Wyatt was also moved to another room today out of intensive care, therefore there is not a nurse in the room at all times. It's his first time alone without a nurse. He is near the nurses station and is in the bed closest to the hallway. Lets just hope a nurse can hear him when he cries.

2 comments:

Maria said...: Hang in there Gina and Benji. It sounds like the past few days have been a roller coaster. You are fortunate though that Dr. Carson is involved. I know it's got to be exhausting but Wyatt is lucky to have very involved parents. Never be afraid to ask lots of questions. That's how you get the best care. We will keep praying for you all.
Love, Maria, Joe, Grace and Daniel; January 14, 2008 at 6:51 PM
Vicki Jensen said...: OK little buddy, you've hit your quota for drama. It's time to start the great Turn Around of '08 and get well and out of the hospital! You're a strong guy and I know you can do this! Jack is anxiously awaiting your first play date!

Hang in there Gina & Benji! This has been a very long and I'm sure exhausting road. I remember what Father Gilberto (the other Hopkins priest) told me one day....God will only have a baby like this born to parents who can handle it and will love the baby very much. He said that I may ask how God could cause suffering of the innocent but that Jack's (and Wyatt's) struggles might be so we can see a miracle in our lifetime. Every time I look at our boys I know they are our miracles. Let's hope you're little miracle gets better and home soon!

Love,
Vicki; January 14, 2008 at 9:18 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.