Quiet Monday

Benji and I took shifts today to be with Wyatt. I worked in the morning while he was at the hospital and he worked in the late afternoon while I was at the hospital. Then I picked up Chloe at my parents and was home around 9pm for some playtime with Chloe. She was allowed to go to bed late... around 10pm. Our lives are hectic, but that's life and we have to accept it and make the best of it. Wyatt is starting to use his hands more, so we brought in a thing that he can lay under and swat at the hanging toys with his hands. He is not too thrilled about it, but he will be soon! His feeds are now at 27ml/hr and he is tolerating it nicely. Keep your fingers crossed!! Next the doctors are likely to increase his calorie intake from 20 per hour to 24 per hour. We requested a family meeting with all his doctors so a plan can be in place for future surgeries and possible time when he will be able to come home. Wyatt gets new roommates almost everyday. Most families sleep with their kids, but I have to remind myself that they are usually there for only a couple of days and Wyatt has been in the hospital since October 9th. It's heart breaking to hear the nurse say that he was really upset after his cares and we are not their to comfort him. Childlife has been wonderful by organizing volunteers to hold him when we are not there. I wish I could be by Wyatt's side all the time, but that's impossible. I have another child, a job, a house... so we are there every possible minute that we can be. I am looking forward to the day we can be under one roof. When Wyatt comes home, I don't want to go anywhere for a long long time!!! Childlife gave Chloe a baby doll with an ng tube in his nose so we can teach her to not touch it when Wyatt comes home. When she saw the baby doll, she pointed to the ng tube and said "boo boo" and stayed away from it!! It was a holiday today, so it seemed like a Sunday in the hospital and Wyatt seemed to like the quietness.