I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Saturday, January 19, 2008
Saturday's Pics
Wyatt enjoyed his vistors today. He was wide awake and happy. I spent the afternoon with him and Benji is spending the night. His feeds are 20ml/hr and his goal is 27ml/hr, so he is almost there and he is tolerating them well. Dr. Ahn,neurosurgeon, came by to visit and said that Wyatt's head is looking good so far and we can wait a little longer for surgery. He will look at him again on Tuesday. I would love for Wyatt to hang out where he is and get healthier and stronger until Feb. 5th and then have surgery to place a shunt in his brain that will drain to his abdomen, then recover, then home!!! Wyatt's oxygen is slowly getting weaned and he is now on 1/8th liter. All that is left is 1/16th and then no oxygen. I like taking the slow steady course for weaning the oxygen. I don't think he is completely ready to come off yet.
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2 comments:
Wyatt buddy! You look fantastic in these photos! You're getting so big! What great news that you're almost off the oxygen too! You've come so far. Just a little longer then you'll be home with mommy, daddy & Chloe!
Love
Vicki
Wyatt looks great in the photo's,heres hoping it wont be to long before Wyatt comes home.Our 2 boys seem to get the same days for surgery!!
Gil(Kadens mum)x
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