I felt like a real mommy to Wyatt. After work on Thursday, I traveled to Hopkins and was pleased to find out that I would be snowed in with Wyatt all night long...since I'm terrible at driving in the snow!! It was our first sleep over together. I enjoyed not having to look at my watch all the time and holding and rocking him for a long period. I slept in a pull out chair beside his crib. He only woke up about 2 times after his cares, so I held him and soothed him back to sleep. He even read a "teacher book" with me.
Medically, it looks like we may have a plan of action. The surgeons are not in a hurry to place a G-tube in and neither are we. We feel comfortable with bringing home Wyatt on the NG tube. There are pros and cons, but Wyatt has endured three surgeries so far and if we can delay one more, it would be great. He is tolerating his feeds very nicely. They are increasing them by 1ml every 8 hours. He is currently up to 18ml/hr and 27ml/hr is our goal. Dr. Carson is away this week, so Dr. Ahn is seeing Wyatt along with the PA, Judy, who is wonderful and answers my millions of questions. Dr. Ahn said if Wyatt is not going to have G-tube surgery in the near future, then he would like to wait to place the shunt. He said, since his soft spot is still fairly soft, that it's not critical to have surgery and it's better to wait for Wyatt to get healthier, stronger, and him tolerating his feeds. He will be re-assessed by neruosurgery on Tuesday. It was decided to do surgery next week instead of Feb. 5th, but now that plan is scratched. It looks like for now the plan will be feeding Wyatt towards his goal and giving him time to grow and get stronger. Maybe a miracle will happen and a shunt will not be needed. The surgeons are debating to allow it to drain in his abdomen, which is most common or his heart. They were first leaning towards his heart, since he may have possible g-tube surgery. But I am not a fan of it draining to his heart and Dr. Chandler said she plans on leaving the central line in for a while, so now the surgeons are thinking about allowing it to drain into the abdomen.
Thank you to Amalia for surprise visiting Wyatt today!!! Also, to his NICU nurses that have been with him from the very beginning... Charla and Melissa who came by to see him.
1 comment:
Oh boy...a snow day! That must've been so nice for you to spend that time and not look at your watch as you said. Things seem to be coming along now as far as a plan goes. I bet this guy is going to surprise you and you'll wind up with just the NG tube and no shunt. You know miracles happen because our boys are proof of that! Jack just got off his NG tube (although we're still not at goal volume but he's gaining weight). I will say some extra prayers that Wyatt hits his feeding goal and maybe you can proceed with just the NG tube.
Thinking of you guys as always,
Vic, James & Jack
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