I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Saturday, January 12, 2008
Tiny step backwards, but still happy
Today started with my morning phone call to Wyatt' nurse. She said that he had a rough night last night and vomited twice with dried up blood. An x-ray was taken, blood work, urine sample, and a stool sample. His white blood cell count is high at 35,000 so he is now on two antibiotics and his feeds were stopped. He currently is on TPN (nutrition), fats, and fluid through his central line so he can continue to gain weight. Because of this little step back, he gets to remain in the IMC section which I am really happy about. He also had his head CT scan this morning and Dr. Carson will read the results on Monday. Wyatt had a great day! He was awake and alert for his visitors today... my high school friend Nicole and her husband Matt, and Wyatt's NICU nurse Charla. Benji and I took shifts today so I could spend time with Chloe at my parent's house. Benji read a few books to him, but Wyatt seems to move his head to look around the book to watch TV. Lets hope to make more progress on the feeds. I just made my nightly phone call to his nurse and he is sound asleep and happy.
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2 comments:
Let's all send positive thoughts for an AWESOME Monday! The CT results AND a swallow study. I'll be checking the blog all day waiting for an update. I hope Wyatt gets off the TPN and back on regular feeds soon. You're right though...at least he still gets to stay in IMC which is reassuring.
Keeping my fingers, toes and everything else crossed for good results on Monday!!
Vic
yep, fingers crossed for a marvelous monday .. followed by a terrific tuesday, whopping wednesday, typical thursday, fitter friday, strong saturday topped off with a stabilized sunday.
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