I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, January 22, 2008
Update
Wyatt's chest x-ray shows more fluid, so hopefully the lasix can take care of it. When I left the hospital he was peacefully sleeping and his stats looked good. I talked to his surgeon, Dr. Chandler tonight and it looks like we may have a plan. Dr. Carson would like to wait about one month for his shunt surgery. The general surgeons would like to wait for the g-tube surgery... until after his swallow study and shunt surgery. So it looks like we will stay at Hopkins for a little bit until his feeds are stable and then go to Mt. Washington until shunt surgery. Benji will be with Wyatt all day tomorrow. Keep cheering and praying for Wyatt. Thank you!!!
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1 comment:
Pee boy pee! Get rid of that nasty fluid! Just keep working at those feeds and when you ace your swallow study hopefully you'll get the green light to go home!
Prayers & cheers still comin'!
Vic, James & Jack
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