Wyatt James Koger, A Fighter from Birth: The waiting game...

Tuesday, January 15, 2008

The waiting game...

Wyatt had a nice day today. We are waiting to hear the plan. I talked to many of Wyatt's doctors today. Dr. Leften-Gref would like to wait about two more weeks for the swallow study and neurosurgery suggested that we wait for Wyatt's organs to heal more. Wyatt's soft spot on his head is still soft, but it's swollen and a little more firmer. So it sounds like we will be waiting for Wyatt to become healthier and stronger. I had a great day with him! Wyatt's nurse, Brandon was FANSTATIC!!! She stayed in his room for most of the day and tended to all his needs. She really cared about his comfort and we appreciate that soooooo much!!! I sent out an e-mail to our family and friends about visiting him while we are not there. If you like for me to send you the e-mail, just let me know.

1 comment:

CDHi Admin said...: Wyatt is so cute! I'm so glad he's doing well. If you need to talk or have any questions, CHERUBS is here for you.

Dawn

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
Over 2000 CDH families and 150 CDH medical professionals, working together since 1995
http://www.cdhsupport.org; January 17, 2008 at 8:33 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.