Wyatt James Koger, A Fighter from Birth: Wyatt is mad!!

Friday, January 4, 2008

Wyatt is mad!!

Wyatt was very alert today, but looked uncomfortable. His breathing tube bothers him and it's difficult for him to fall asleep. Wyatt was very mad today!! The doctors are weaning him from the vent, but because of not so good blood gases, things have slowed down a little and it looks like they will try for tomorrow. The tube in Wyatt's throat is size 4 which is a little too tight. Size 3 1/2 is a little too small so Wyatt is given steroids to prevent his airway from swelling. Since the tube does not fit perfectly, Wyatt is probably uncomfortable. It just breaks my heart to see those silent cries. Otherwise, I can't complain. His stats look good and so far, his surgeon said he is doing great! On a side note... Wyatt's friend Jack (his CDH sidekick) was in the ER today, but Jack is fine and was able to go home. One day, these boys are going to have play dates and compare their scars!! Also, please pray for Wyatt's NICU neighbor Drew who is getting tested for Leukemia. So far things look fine and we continue to pray for him.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.