I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Saturday, February 9, 2008
Back on oxygen....
When I heard Wyatt was off oxygen yesterday completely, I was a little surprised.... I wanted to take things slow and let his body heal from his surgery without adding any stress to him. He is currently on 1/8th liter which is the lowest setting and I am ok with that. Maybe before he gets home, we can wean him off slowly. Last night when I called the nurse before I went to bed, they had to put Wyatt back on oxygen, because when he feel into a deep sleep, he kept falling below his 94 oxygen limit. I am glad the nurse made that decesion! Thank you!!!
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1 comment:
1/8th liter is practically nothing. That was a good first trial off if you ask me. I agree with you, why push it. Wyatt will tell you when he's ready.
I'm glad to hear you guys are getting a plan together. I can't wait for the day I open the blog and see Wyatt in his car seat and going home! I can feel that day is on the horizon!
Keep being a good boy and getting strong Wyatt!
Love
Vic, James & your friend Jack
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