Wyatt James Koger, A Fighter from Birth: Drain fluid drain!!!

Wednesday, February 6, 2008

Drain fluid drain!!!

I am sitting by Wyatt's bedside and he is sound asleep. He was moved across from the nurses station close to the hallway and I feel REALLY GOOD about that. I heard that he may move to Mt. Washington tomorrow. Wyatt is doing really well... his soft spot on his head is a little softer and it's not as swollen. The shunt is working and fluid is draining!! Dr. Lefton-Gref would like to wait a few more weeks for the swallow study because she said he will do better if we wait until he is fully healed. I know it seems like we are getting bounced back and forth from Hopkins and Mt.Wash with out a plan. I hope to formulate a plan tomorrow!! While I was sitting here, the cleaning lady from Hopkins stopped by to visit Wyatt for a good 20 minutes and said that she is praying for him. Isn't that amazing... Wyatt has touched so many lives... even strangers. Wyatt's feeds are back to normal and he seems to be tolerating them.

3 comments:

Anonymous said...: Hi Wyatt!!!
I am so glad to hear you are doing so well....you go drain!!!! :)
I can't wait to see you again when you are all settled back at Mt. Washington.
Now you tell baby Drew not to be afraid because you know all the *in's* and you will help him get through it...be stong little buddy...you are almost home!!!
Hugs and prayers,
Karen :); February 7, 2008 at 6:51 AM
Gillian Brown said...: Hi - i'm delighted Wyatt is doing well!My freinds boy had a shunt placed at 6 days old and he has never looked back and is a healthly happy 13 year old now.I'm sure Wyatt will continue to go from strength to strength.Give Wyatt our love.Gil and Family x; February 7, 2008 at 8:13 AM
Anonymous said...: Hey Wyatt...
I hope your transfer to Mt. Washington went smoothly and Nurse Rachel is there taking care of you!!! Tell Mommy to send in more pictures!!!
Hugs,
Karen :); February 7, 2008 at 5:47 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.