I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, February 26, 2008
Fun in the playroom!
I decided to flip my schedule around today and see Wyatt in the morning. When I arrived he was wide awake. I held him and he feel asleep in my arms. When he awoke, we read a few books and then it was time for him to go to the playroom. It was the first time I saw Wyatt inside the playroom and he loved it! His big eyes were looking all around and he just seemed so excited. I can't wait to see his expression when he comes home. I left for work and Wyatt stayed in the playroom for the next hour and half. Afterwards, PT worked with him and a volunteer held him for two and half hours. Benji will spend the day with him tomorrow during the day and I will go in the evening. Thursday will be Wyatt's big day- g-tube surgery.
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1 comment:
Hi Wyatt!!!
I am so glad you had a fun day...one more day little buddy and then you get that nasty tube out of your nose and that cute little face will be tube free!!! HOORAY!!!!!!!!!!!
We will ALL be thinking and praying tomorrow for a quick, easy last hurdle....then you come HOME!!!! How wonderful does that sound??? I look at your "smiley" picture all the time and no matter what the day has brought, your face brings a smile...can't wait to see you again and this time I told Mom Mom I'm gonna have to steal you from her!!!!!
Sending love and big hugs,
Karen :)
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