Today Wyatt was the happiest that I EVER seen him. He was smiling all day long. Every time I showed him pictures of Chloe, Abby, and Sputnik, he would smile. It's so nice to see him have fun and be a kid! Today his feeds were started back up again 5 ml at a time. I just called and he is up to 10 ml. His goal is 32 ml/ 27 calories. I talked to the nutritionist and she recalculated his feeds to match his current age. Also, Wyatt had a cat scan and an exam by Dr. Carson today and everything looks fine. His soft spot looks great! The decided against decreasing the number of the shunt. He is currently 2.5 which is a slow flow and it seems to be working, so they are keeping it as is. I learned that he was suppose to go back to Mt. Washington tomorrow (Saturday) but the surgeon decided to change it to Monday. He would like to wait until Wyatt gets to his goal feeds. We were also talking about the central line. Wyatt will need to get that removed before he comes home. It has to be done at Hopkins in the OR under sedation. So it was recommended that he come back to Hopkins for clinic to get it removed before he comes home. I would rather err on the safe side and have it removed before we go home rather than on Monday. Overall, it was a good day!
I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Friday, February 29, 2008
The Happiest Ever!!
Today Wyatt was the happiest that I EVER seen him. He was smiling all day long. Every time I showed him pictures of Chloe, Abby, and Sputnik, he would smile. It's so nice to see him have fun and be a kid! Today his feeds were started back up again 5 ml at a time. I just called and he is up to 10 ml. His goal is 32 ml/ 27 calories. I talked to the nutritionist and she recalculated his feeds to match his current age. Also, Wyatt had a cat scan and an exam by Dr. Carson today and everything looks fine. His soft spot looks great! The decided against decreasing the number of the shunt. He is currently 2.5 which is a slow flow and it seems to be working, so they are keeping it as is. I learned that he was suppose to go back to Mt. Washington tomorrow (Saturday) but the surgeon decided to change it to Monday. He would like to wait until Wyatt gets to his goal feeds. We were also talking about the central line. Wyatt will need to get that removed before he comes home. It has to be done at Hopkins in the OR under sedation. So it was recommended that he come back to Hopkins for clinic to get it removed before he comes home. I would rather err on the safe side and have it removed before we go home rather than on Monday. Overall, it was a good day!
Subscribe to:
Post Comments (Atom)
1 comment:
Hi - So glad Wyatts been so happy it just goes to show he must be feeling alot better!
Gil and family x
Post a Comment