This morning we buckled Wyatt in his car seat, loaded him into the ambulance and took him back to Hopkins for a clinic appointment with Dr. Abdullah, his surgeon. Dr. Abdullah examined Wyatt and said that he would like to do surgery next week to place a g-tube in him. He is going to try the peg method which is not as invasive as normal g-tube surgery. Bascially in laymen's terms, the surgeon will insert a tube with a light down Wyatt's mouth to his stomach. The light will shine through his skin and the feeding tube will be placed. It's much more complicated than my description and Dr. Abduallh's explaination sounds fanicer than mine. I have to say, Wyatt has the coolest surgeons in the world. Dr. Abdullah and Dr.Chandler are so nice and understanding and they make everything sound so easy. They take their time with Wyatt and have our interests in mind. They always say that the parents know best and include us in all their conversations. If the PEG method does not work (since Wyatt's stomach may be hard to get to) then he will go home on the ng tube with a night shift nurse until we can bottle feed. Mt. Washington just called while I was putting Chloe to bed and said that Wyatt is now on IV fluids since he just spit up brown coffee grinds which means old blood... probably from the ng tube scraping the lining of his stomach.... boy do we need the g-tube!!! Because of him going on and off of IV fluids, Wyatt lost 1/2 pound and now weighs exactly 12lbs. Also, the Dr.Abdullah and Margy, PA is in agreement that Wyatt needs to taste something other than yucky reflux spit-up, so it is suggested that Wyatt's pacifer is dipped in tasty formula so he can begin to associate taste to be something good and not bad spit up all the time.
Also, today Wyatt's CDH friend Jack was in the newspaper. He is a superstar!!! Jack's parents are organizing a blood drive on March 31st which is CDH Awareness Day from 2-8pm. Click here to read the article- JACK's Newspaper article Jack's article reminds me so much of Wyatt. They have the same doctors and I can relate so easily to what Vicki said about her son Jack, his doctors, and his experience at Hopkins. We are so happy that Jack is doing so well!!
In other CDH news, baby Ned had a successful heart surgery and came off the vent for a few hours today!! Ned's mom description of holding her child for the first time is very touching. I can relate and remember the feelings I had, which were similar when I held Wyatt for the first time (which is captured on video camera). Click here for Ned's blog.
Also, Baby Liviana came home today for the first time ever!!! I can't wait to have the feeling of everyone under one roof... I hope soon to relate. Click here for baby Liviana blog.
Reading about other CDH babies shows me how far Wyatt has come. We are so lucky and fortunate. What a blessing Wyatt is to us...our lives are so much richer because of him.
ps- Thank you McDaniel College... we appreciate your thoughtfulness.
3 comments:
Oh boy! Home is getting close now! Time to get Wyatt used to yummy stuff! This is just a shot in the dark but did you ever ask about the type of NG tubes they use on Wyatt? When we were at Hopkins they used these green ones that were so hard. When we came home they switched us to orange ones and they were still easy to get in but overall much more flexible. Maybe a simple change like that would stop the irritation to Wyatt's belly? Just an idea.
Thanks for mentioning Jack's article. James was teasing Jack because that's when he was losing his hair..poor baldy baby! It's finally coming back (along with some teeth I think!)
I'll be in Connecticut with Jack for 1 and a half weeks but Jack and I will be sure to keep tabs on Wyatt!
Good luck with the surgery. I hope the PEG procedure works! Jack is losing a bit of weight. I hope he's not trying to copy Wyatt and think all the cool kids are getting PEG tubes!
Vic
HOORAY for Wyatt!!!! What wonderful news!!! I couldn't wait to read the blog this morning and had my fingers crossed!!!!
Congrats Mom and Dad and thank you Hopkin's doctors...yummy stuff on his pacifier....sounds WONDERFUL!!!!
Hang in there little buddy....you are almoxt home with your big sister Chloe!!!! And you haven't even met your "four-legged" siblings yet!!!!
Have a good day....happy thoughts coming your way!!!
Love,
Karen :)
Gina, I have been so busy getting ready to get married that I have been neglecting my daily blogs. Your family will be cheering Wyatt on from Japan!!
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