Wyatt James Koger, A Fighter from Birth: Busy Day!!

Wednesday, May 7, 2008

Busy Day!!

Today was a really nice and busy day with just myself and the kids!... and I am worn out!!! You really are busy all day long playing and tending to their needs with a 21 month old and a 6 month old!! We had a few visitors today and took a long walk on this beautiful day! Pat, the media specialist brought me lunch today (thank you Pat!) and stayed to help put the kids down for a nap. Wyatt was a good boy and took a nap and Chloe decided not too... but later she did! A couple hours later, my friend Jessica and her daughter Alexi came by to visit. Alexi was such a great helper and played with Chloe the entire time. Chloe really enjoyed it and we are looking forward to her visiting us again! Wyatt's feeds were increased from 35 ml to 37mls so that he will gain more weight. So far he is tolerating it. Our goal in three days is 40 mls per hour. Go Wyatt Go!!

By the way... you HAVE to read baby Skyla's blog... she needs your prayers more than EVER!!! She was born with CDH around the same time as Wyatt and the doctors told her mom that they don't think she is going to make it... well she is fighting hard and is still with us....I think she will make it... so please pray for her.
http://skylacdhbaby.blogspot.com/ CDH babies are fighters!!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.