Wyatt James Koger, A Fighter from Birth: Art in the Park and a bath... a hot Saturday!

Saturday, June 7, 2008

Art in the Park and a bath... a hot Saturday!

Do you have to drag me out in the 100 degree weather, just so Chloe can do a craft??

Chloe doing a craft

Well... it's not too bad... I really liked the belly dancers!!

Wyatt has a helper with his bath and he is just thrilled about that!!

My friend Amy is a very talented crafter and made these cool cards for me to use as thank you notes. Check out her blog for more!! She has a family blog and a craft blog.

Today was a busy day.... we decided to have a family day and go to the Art in the Park. It was almost 100 degrees, but we had a great time! Chloe made a craft and Wyatt loved watching the belly dancers. We then walked to a local Mexican Restaurant for lunch. Chloe had a great time, but Wyatt decided to sleep through he entire experience!! We came home and they both took naps, then we went for a family walk. Overall, a busy, fun day! In between, Chloe helped us give Wyatt a bath. Wyatt now weighes an even 16 pounds and is currently up to 42 mls/hr as of today (his goal) Baby Sklya needs your prayers... her family has been through such a roller coaster ride, but Skyla always shows her strength!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.