Wyatt James Koger, A Fighter from Birth: Weekend Re-cap

Monday, June 16, 2008

Weekend Re-cap

This weekend was fun and busy!! On Saturday, we went to my cousin's Sabrina's house for a party. Wyatt stayed home with Daddy... but Chloe had a great time. Sabrina lives in Federal Hill, Baltimore and her house has a top deck... Chloe felt free as a bird running around. Father's Day was Sunday, but Daddy had to work all through the night and day since it was "network down day." So Father's Day is post-poned until next Sunday. I decided to venture out to the parent's house an hour a way with both kids. We had crabs and pizza outside and Wyatt enjoyed every minute of it. Chloe loved playing soccer with her Aunt and Uncle. Our ex-nanny is in town, so Monday night the girls went out to catch up on life. Nanny is very happy in Portland and we are very proud of her!!!

My sister wrote another sweet message about baby Skyla on her blog.

On a side note, Wyatt's feeding tube has a small tear in it and it's impossible to keep tight!! We have to tape the food tube to it and it's really annoying!!! Hopefully we can solve the problem soon.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.