Wyatt James Koger, A Fighter from Birth: Another CDH baby needs your prayers

Thursday, July 10, 2008

Another CDH baby needs your prayers

The power of a blog is amazing... I never thought I would make so many connections with people around the world and have so much support for Wyatt and other CDH babies. The purpose of this blog is to educate others about CDH, but to also have as many supporters to pray for these little babies as possible. Well.. another baby needs your prayers. Baby Seth is on ECMO and the doctors are doing everything they can for him. Read Baby Seth's carepage for more info.

2 comments:

Anonymous said...: Gina - I can't get to Seth's link. Maybe I have to be a member or something? Or it's set on private?; July 10, 2008 at 9:10 AM
Anonymous said...: I have also been following Seth's progress and it sounds like there is a miracle in the making.

I have also recently read up on your little Wyatt's story. I discovered all these great CDH blogs a few months ago and have been catching up. They are so inspirational. I wish I had known about them when I gave birth to my CDH baby in late November of 2007. Your Wyatt looks like one happy baby. His journey has been a rough one, but isn't it amazing how the babies manage to enjoy their little worlds despite it all.

Conincidentally we named our son Wyatt as well. I really liked the name and loved the meaning. We chose his name before he was born and we had no idea how fitting it would be. Our Wyatt's CDH was a surprise at birth.

My Wyatt is 7 months now and doing well. I'll continue to follow your Wyatt's story. You must be an awesome mom because both your kids look so happy and as the mother of 1 I can only imagine that 2 (especially when 1 needs some extra special attention) is tons of work!

Paula
Toronto, ON
pfurgiuele@hotmail.com; July 11, 2008 at 9:11 AM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.