Wyatt James Koger, A Fighter from Birth: Other CDH Blogs

Sunday, August 17, 2008

Other CDH Blogs

Big prayers for Baby William. William is expected to make his entrance into this world on Monday!!! How exciting... their parents from Georgia are temporarily living in Philadelphia to deliver at CHOP, a hospital that specializes in CDH babies (we looked into it, but Hopkins was closer to us). Read their blog for updates.

Also, another CDH mom contacted me today through e-mail telling me about another baby expected to be born at Hopkins. Her daughter, Ella West who is cute as ever, was born in July with CDH and is still on oxygen like Wyatt. Read her blog for more. Our prayers are will Ella as well. Jaske's
(a CDH baby) mom is expected to give birth at Hopkins on Monday as well.... big prayers for her too.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.