Wyatt James Koger, A Fighter from Birth: Shh.... Don't tell Chloe...

Sunday, August 17, 2008

Shh.... Don't tell Chloe...

Chloe loves Sesame Street so to surprise her for her party tomorrow, Benji and I stayed up late to make these ELMO cupcakes! We used my nifty Pampered Chef icing syringe??? to make the icing look like fur, orange gum drops for the nose, marshmallows cut in half with the sticky side up for the eyes, and chocolate chips for the eye balls. I hope she likes them!!!

2 comments:

Paula said...: Oh my gosh...those are awesome. Your little girl is adorable and I am sure she will love those cupcakes.

I was always impressed with your ability to juggle two little ones, but now I'm amazed because I realize how young Chloe must have been when you received Wyatt's diagnosis and that she was barely a year old when you became the mom of 2. I don't know how you balanced it all especially during Wyatt's stay in the NICU.

Chloe and Wyatt have some great parents!

Paula (the other Wyatt's mom); August 17, 2008 at 10:37 AM
Anonymous said...: You guys are the best parents ever!!! I don't know how you do it all!!!; August 17, 2008 at 7:44 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.