Wyatt James Koger, A Fighter from Birth: A good day...

Wednesday, September 3, 2008

A good day...

I am sitting by Wyatt's bedside now and he finally fell asleep after being awake since 6am!! He doesn't want to miss anything! I worked today and Benji stayed by Wyatt's bedside and I arrived after work with Chloe to do the kid switch-a-roo and for the night shift. My kids are great! Chloe is so happy to drive an hour to Hopkins, spend 30 min visiting her brother, and then drive an hour home. She is only two and stays in such a good mood during these long car rides. Today Wyatt had his head CT scan, ultrasound, and a new g-tube. We were also moved from the IMC to down the hall (a room across from the nurses station). Tomorrow we will have a consult with the pulmonary docs to see how we can get some of his fluid out of his lungs. I heard the "H" word today... but I am not saying it aloud until it actually happens:) He is up to 35ml of Elacare.. just a few short of his goal and seems to be tolerating it nicely.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.