Wyatt James Koger, A Fighter from Birth: Election Day!

Tuesday, November 4, 2008

Election Day!

Today Susan and I took Wyatt and Chloe to a play to see "Harry the Dirty Dog" at our local theater. We also met our other nurse, Kathy and her kids there and sat all together. Wyatt was so cute, he kept looking at all of us and was probably thinking why are his nurses and mom all together??? We had a great time! Wyatt fell asleep as soon as we sat down for the play, but we didn't want him to sleep through it, so Susan did everything she could to try to wake him up. When the music started, Wyatt woke up, sat straight up and watched the entire play. He only cried when the actor hit the high notes, but he enjoyed watching the hour long play. Chloe also enjoyed it. After being awake for 10 hours, Wyatt finally got to take a nap from 2-4pm. We also noticed that Wyatt has a red spot and knot on his thigh from receiving his 1 year old shots about 1 1/2 weeks ago. His ECMO wound looks a bit puffy and is leaking pus. So I e-mailed our pediatrician today and he is not worried about the knot, but is worried about his ECMO wound and so am I. We are putting antibiotic ointment on it and it's looking a little bit better:)) Hopefully it's nothing.

I also just discovered another CDH baby who was given her angel wings after one year in the hospital. Reese passed away on her birthday. Our thoughts and prayers are with the Kostijuk family.

In other news, Wyatt's nurses Kathy and Susan are also nurse one day a week for a little 4 year old girl, Jamie Ann. Yesterday, on her birthday, she passed away. I know Kathy and Susan are grieving and our thoughts and prayers are with them. They had an opportunity to visit her in the hospital on Saturday together and I was told that she passed very peacefully.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.