Wyatt James Koger, A Fighter from Birth: First RSV Shot!

Monday, November 10, 2008

First RSV Shot!

We had a great day today! Chloe went to Tumble Kicks and Story Time and Wyatt went to the doctor to get his RSV shot and Polio. Our pediatrician checked his ECMO wound which was draining liquid and said that it looks good. (It's still not fully healed). Wyatt was so happy in the doctor's office, but when Dr. G walked in, Wyatt looked at me and then started crying. He reached out for me to hold him. Dr. G was so happy that this occurred because he said that is normal. He is such a cool doc!! Wyatt's oxygen when he falls asleep has been great! His monitor reads 100 percent and we turned him down a little below 1/8th!! It's awesome!! But we know he still needs o2 because during the day, if the cannulas are out of his nose, his monitor alarms because it's below 93. Sometime we have to turn him up to 1/2, but his average is 1/4 liter. It's a mystery to me... but I am glad we are making progress. Wyatt only gained 5 ounces this month so we are working hard to beef him up!! He will reach his goal of 50 ml tomorrow (it has taken us a month to get there!!) and in another two days we start his new formula, Neocate. I hoping he will gain more after these changes. So far, he has tolerated the increases, but we are doing it very slowly on Wyatt's terms:)

We received one of our largest bills today from Hopkins. Apparently, our insurance company denied Wyatt's surgery over labor day. We recieved a bill which amounted to a teacher's salary (ummm... and I am a teacher:)) So we will be calling the insurance company tomorrow!!!! Oh.. and we get a 1% discount if we pay it in full by Nov. 29th... how thoughtful...I'll just go out to my little garden where I planted the money trees and pick some:))

2 comments:

Paula said...: Glad to hear Wyatt is making progress with his oxygen requirements. Sorry to hear weight gain was a little slow this month (the bane of our existence too). You're so right though, his terms are the only terms that count!

Thas sucks about the insurance. I feel for all of you American CDH parents having to deal with insurance companies on top of everything else. It really makes me appreciate our universal health care system in Canada.; November 11, 2008 at 1:25 AM
Anonymous said...: Amen Paula, I hear you... G O B A M A !; November 11, 2008 at 9:43 PM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.