Wyatt James Koger, A Fighter from Birth: Music Class

Sunday, November 16, 2008

Music Class

I think I got the touch of the flu this weekend. Benji has been wonderful and stayed up late and woke up early to be with the kids and even cleaned up! We did all go out yesterday as a family to a "Music Together" class which was fun and I even took both kids to church by myself this morning. I usually only take one.. but both were really well behaved. Overall good weekend... I just want to start feeling better:)) Wyatt has finally reached his feeding goal. It took almost a month, but he likes to go slow and he has been tolerating all the changes really well. Last weekend, he reached his goal of 50 ml/hr for 20 hours and this weekend, we switched his formula from Elecare (which he has been on since he started eating) to Neocate for one and older. Dr. G said it's a better formula for babies over one because it has more of the nutrients he needs.... especially since he is getting more active. Wyatt still gets 1.2ml iron a day (we split this .6 and .6 during the day) and 1 ml of his multivitamin in the evening. So far so good! I was so nervous about switching formula, but he seems to be tolerating it ok.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.