Wyatt James Koger, A Fighter from Birth: CDH Baby News!

Tuesday, December 30, 2008

CDH Baby News!

Good News! Our family would like to congratulate the following CDH families who are currently expecting a new baby!!! Congrats to Vicki (Jack's mom), their baby is due this summer, Skyla's family, Kaden's family, and Andrew's family! Wow!!!! we are so happy for them and wish them the best!

New CDH family blogs- Baby Virginia- Her parents just decided to deliver in San Fransicso (UCSF), well known for CDH babies. Follow her journey as it's just beginning. She is in our prayers. Baby Alina is doing great! She is from the UK and had the experimental fetal surgery- balloon procedure, or Fetoscopic Treatment for Congenital Diaphragmatic Hernia (FETO)in which the trachea is blocked to stimulate lung growth. We looked into this procedure for Wyatt but it was not recommended. It sounds like for Alina it was a great decision because she was just born and no ECMO was needed!!! Go Alina!!!

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.