In other CDH News... I have been following baby Oliva who is a twin and was born with CDH. Her parents are super heroes living in FL temporally to get the best care for their newborn daughter Oliva and her twin Mason. I can't imagine caring for a new born PLUS having another new born in the hospital on ECMO. She is being cared for at Shands by the world renowned CDH doctor Kays. Check out her blog, she just had surgery yesterday. Baby Carter is continuing to do awesome. Check out his blog and a reminder how important it is of CDH awareness.
I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, December 23, 2008
Merry Christmas
Merry Christmas from our family to yours.




In other CDH News... I have been following baby Oliva who is a twin and was born with CDH. Her parents are super heroes living in FL temporally to get the best care for their newborn daughter Oliva and her twin Mason. I can't imagine caring for a new born PLUS having another new born in the hospital on ECMO. She is being cared for at Shands by the world renowned CDH doctor Kays. Check out her blog, she just had surgery yesterday. Baby Carter is continuing to do awesome. Check out his blog and a reminder how important it is of CDH awareness.
In other CDH News... I have been following baby Oliva who is a twin and was born with CDH. Her parents are super heroes living in FL temporally to get the best care for their newborn daughter Oliva and her twin Mason. I can't imagine caring for a new born PLUS having another new born in the hospital on ECMO. She is being cared for at Shands by the world renowned CDH doctor Kays. Check out her blog, she just had surgery yesterday. Baby Carter is continuing to do awesome. Check out his blog and a reminder how important it is of CDH awareness.
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