Wyatt James Koger, A Fighter from Birth: Chloe is an official BIG girl!

Wednesday, January 28, 2009

Chloe is an official BIG girl!

Chloe's bed time is 8pm, but at midnight, I went in to take pictures:))

oops... I think I woke her up:))

As you may know, we have had Chloe's big girl bed for a few weeks, but she would only take a nap in it from time to time. After I put the princess sheets and comforter that her Gran and Grandad gave her, she wants to sleep in the bed now. Last night was her first night sleeping in a real bed all by herself. She was so good, she slept all night long (I kept checking on her and took pictures while she was sleeping). She even got out of bed by herself and came downstairs after she woke up. I am so proud of her:))

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.