I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Monday, May 25, 2009
Sneek Peek....
Here are a few photos of our Memorial Day Weekend... it's getting late, so there are more to come later! Chloe and I drove to Savannah, Georgia this weekend for my cousin Sabrina's wedding along with my other cousin Christine and her daughter Carolyn who is 9 years old. Wyatt and Benji stayed behind (we still don't feel safe taking Wyatt away from Hopkins). We met my entire extended family in Savannah. It was rainy... but it stopped just in time for the wedding and Paula Dean catered the wedding!! It was a fairy tale wedding and we congratulate Sabrina and Joel. Savannah is a great city!!
Today we attended the Memorial Day parade on Main Street and then had a play date at Lily and Molly's house.. Nanny was in town for the weekend!!
It's not too late to vote for my sister- http://www.hostourcoast.com/submission.cfm?v=52116A26-3048-71C2-17D97D0931D9BBEF. She still needs MANY votes, so please pass along the website to anyone you know!! Thank you very much!
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