Wyatt James Koger, A Fighter from Birth: Let's get Wyatt to walk campaign!!

Sunday, June 13, 2010

Let's get Wyatt to walk campaign!!

Wyatt still can not walk or stand unassisted. Every specialist and therapist said that he is fine and one day he will walk. They think it's a combination of low muscle tone and his brain bleed. I agree, but now that I am taking a closer look at his ankles, I think they may NOT be helping in the walking department. Wyatt wants to walk so bad. Yesterday at the picnic, he said, "Mommy, I want to run!" He is 35 pounds, has a mind of a two and half year old, but his legs just won't let him walk. It's sad and very challenging and frustrating. We are trying to do everything possible to set him up for success. Intense therapy at home with the nurse and his parents, infants and toddlers once a week, and now we are increasing KKI to three times of week for most of the weeks of the summer. We even buy any type of equipment that is recommended for him and make sure we show him we are proud and praise him all the time. He knows we are so proud when he stands. Here are some pics of his ankle and foot. He has a very high arch and his ankle tilts in-ward so that he is off balance. I think I am going to send him to a podiatrist and get his opinion. Please pray for him to be able to walk soon.

2 comments:

Jennifer Tenney said...: Praying for Wyatt to walk and for you guys to find answers and peace of mind! I have been following Wyatt's story since before my Dakota was born and he is such and inspiration and so adorable!!!!
Hugs,
Jennifer
Mom to Dakota 12-25-2008
R=CDH survivor; June 14, 2010 at 2:14 AM
Dotty said...: wyatt see's a physical therapist right? have you talked to them about possibly getting him either AFO or SMO braces? my bed for him would be the SMO's...zach has them and though he isnt walking yet either, we have noticed a huge differnce since he got them. they help him balance and use his legs/ankles the correct way. wyatt's ankles look alot like zach's without the braces. just a thought. always in our prayers!; June 14, 2010 at 2:42 AM

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.