Congenital Diaphragmatic Hernia Awareness Day 2012

What have we been up to lately? Wyatt is four and a half now. As you can see by the pictures, Wyatt has been enjoying a normal life: T-ball, gymnastics, preschool, and music class. He still attends weekly PT sessions at KKI and Infants and Toddlers. He is still tube fed and on oxygen while he sleeps. We are going to attend a six week feeding clinic this summer and he is currently going through genetic testing. We just discovered he has an abnormal hip which explains the delayed walking at 3 1/2 and abnormal gait. We are not going to let that stop us from having fun and getting involved!! He is a smart little boy full of wonder and enthusiasm. We are so proud of all his accomplishments. He is eating more solid food each day. My goal for Wyatt is to be totally independent from the feeding tube and oxygen. He has one more year before Kindergarten, so I think we can do it!! We pray for all the CDH babies who are angels and for the babies that are fighting for their lives now. Research says that half of all babies survive, hopefully that number will increase with more awareness.