Wyatt James Koger, A Fighter from Birth: One more day....

Saturday, April 9, 2016

One more day....

Always an adventure with Wyatt! He has been complaining of headaches and had double vision this morning and a weaker left side (he's left handed and can not pick up the fork to eat or can not walk unassisted). We were planning on going home pending results of an MRI today. The doctor just came in to talk with us to explain what's going on - first the good news... the fluid in the spine is decreasing, so the stent is working! The headache pain is caused by swelling from the vein/artery that was cut. Also, he has fluid under his skull. It will take a couple of weeks for the fluid to get absorbed and the swelling to go down but it will get better. He asked us to stay one more night for observation. Overall, his doctor is very happy that the fluid in the spine is already decreasing.

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.