Wyatt James Koger, A Fighter from Birth: Making Progress!

Friday, July 14, 2023

Making Progress!

Wyatt is regularly going to PT and OT and we are trying to get him out and about to do normal activities. Tylenol is given less and less, except bedtime. In order for him to sleep comfortably, he gets Tylenol at bedtime and then Ibuprofen at 3:00am. He is walking more confidently and a little longer distances. He does still maintain a pain level of 2 or 3 and gets a little dizzy. His stomach hurts after eating and consequently has lost weight. In other news, he secured a location and he purchased a new candy vending machine for his business. He went swimming and took the scooter around BJ’s. Slowly, he is making progress.

Putting together his vending machine

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Hurdles that I faced and achieved!

After birth, I was placed on ECMO at Johns Hopkins Hospital for 13 days. On day 13, I had a surgery to repair my hernia and was removed from ECMO, but my organs would not fit in my abdomen. I had a silo for a week and then surgery to place the organs back in the abdomen. Then, part of my intestines re-herniated into my chest cavity two months later and I had another surgery to repair that. After my first surgery, I experienced an intraventricular hemorrhage in my brain and at four months old I received a VP shunt. After I was extubated, I learned that I have right vocal cord paralysis. Then I had g-tube surgery and after I finally got to go home after 5 longs months at Johns Hopkins and Mt. Washington Hospital! Only for a few weeks, though. In mid-April my intestines reherniated again and sent me into surgery. I came home, and had a long run before my THIRD reherniation in the beginning of September on Labor Day weekend in 2008. Then I was hospitalized for twice during the winter 2009 for two respiratory infections. Well, I almost lasted a year until my next surgery! Just this past June, in 2009, I had surgery to wrap my stomach around the esophagus, a nissen. This has helped with my reflux and my hiatal hernia. I will be 2 in October, I love scooting around but refuse to stand up and walk. I am a little miracle and thank God, my doctors, my nurses, family, and friends for my strength, my fight and a happy life.