I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Wednesday, November 28, 2007
Let's try an experiment...
Today the doctors tried a little experiment. They removed the oxygen cannulas from Wyatt completely to see how he would do. He was off oxygen for about 3 hours and did fairly well. However, his oxygen saturation kept de-stating to the low/mid 80% Ideally, his oxygen saturation should be between 96%-100%, so the decision was made to put him back on oxygen at a very low setting. As far as feeding, Wyatt took about 9 ml from the bottle for me today. Wyatt was not a happy camper... our nurse Cheryl seems to think it's withdrawal from the medications. He was just a little fussy. Hopefully in another day or two, he will feel more comfortable. Our schedule with Wyatt is now more structured since he is learning to feed from a bottle. I am giving him a bottle from 12-3pm and Benji tries to give him a bottle from 7-10pm. We are like two passing ships, but it's important that Wyatt has a parent with him during to feel secure about taking a bottle. Also, with all the traffic, my ride home takes about 1 1/2 hours. To spend a little time with Chloe, I took her to see Rudolph the Red Nose Reindeer tonight at the Carrol Arts Center. It was fun! Also, I wanted to thank everyone again for their support. In just the past few days, I have heard from co-workers from North Harford (where I worked 7 years ago), New Windsor, Central Office, and neighbors. Wyatt has received adorable art work from Dan and Grace,prayer cards and special wishes. Thank you... as much as I would like Wyatt not to go through all this, it is a blessing to know how kind everyone can be. thanks :)
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3 comments:
sounds like an overall good day. He is getting better and better each day.
Has it really been 7 years? I am so bad about staying in touch with all of you guys...especially being out here in TN. I do think of all of you often and miss the fun times we had together!
It sounds like it's still certainly not easy, but maybe getting better? We think of you often and wish you continued strength and positive energy. We've got a new little one coming in June, and when I think back to when Iain was Chloe's age, I just don't know how you are keeping things together. What a fighter that little Wyatt is!
Julia Jasken
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