Wyatt seems to want one of everything... one normal lung, one carotid artery, and now one normal vocal cord. Since Wyatt was extubated (taken off the ventilator), he has a hoarse voice. The ENT doctor put a scope down Wyatt's throat and discovered that he has right vocal cord paresis, meaning the right vocal cord is slightly paralyzed, it moves a little bit. Because of this, Wyatt's airway is not protected and fluids can enter his lungs which can cause pneumonia. Tomorrow, Wyatt will be having a swallow test to find out if he is aspirating. Bottle feeding is suspended until the results of the swallow test. Check out this website to learn more- http://www.entnet.org/healthinfo/throat/Vocal-Cord-Paralysis.cfm Otherwise, Wyatt is looking really good, is alert, and seems to be very comfortable. He also had an Echo cardiogram today which is normal and his head sonogram shows that his head bleed is stable. I am trying to get Wyatt moving since he is alert and will be two months old tomorrow! To stretch Wyatt out, we play "How big is Wyatt... so Big!" He now weighs about 9 1/2 pounds! Calories and vitamins were added to his diet of breast milk. Many people are asking when he will be home. Once we know his airway is protected and his feeding is under control, he can probably come home on oxygen and the ng tube. Another possibility is getting transferred to Mt. Washington, a rehabilitation hospital owned by Hopkins. Thank you everybody!! Above is a photo of Chloe.. she is becoming such a big girl sitting at her little table in the kitchen coloring (her new favorite activity)
I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Monday, December 3, 2007
One
Wyatt seems to want one of everything... one normal lung, one carotid artery, and now one normal vocal cord. Since Wyatt was extubated (taken off the ventilator), he has a hoarse voice. The ENT doctor put a scope down Wyatt's throat and discovered that he has right vocal cord paresis, meaning the right vocal cord is slightly paralyzed, it moves a little bit. Because of this, Wyatt's airway is not protected and fluids can enter his lungs which can cause pneumonia. Tomorrow, Wyatt will be having a swallow test to find out if he is aspirating. Bottle feeding is suspended until the results of the swallow test. Check out this website to learn more- http://www.entnet.org/healthinfo/throat/Vocal-Cord-Paralysis.cfm Otherwise, Wyatt is looking really good, is alert, and seems to be very comfortable. He also had an Echo cardiogram today which is normal and his head sonogram shows that his head bleed is stable. I am trying to get Wyatt moving since he is alert and will be two months old tomorrow! To stretch Wyatt out, we play "How big is Wyatt... so Big!" He now weighs about 9 1/2 pounds! Calories and vitamins were added to his diet of breast milk. Many people are asking when he will be home. Once we know his airway is protected and his feeding is under control, he can probably come home on oxygen and the ng tube. Another possibility is getting transferred to Mt. Washington, a rehabilitation hospital owned by Hopkins. Thank you everybody!! Above is a photo of Chloe.. she is becoming such a big girl sitting at her little table in the kitchen coloring (her new favorite activity)
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