I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Tuesday, November 20, 2007
No More IV fluid!
Wyatt is almost on full feeds now so his IV was removed and now he gets all his nutrition from breast milk. His CT scan yesterday showed no major changes. The blood in his right temporal lobe is absorbing. However, there is a slight increase in dilation in his ventricles but it's not causing a major concern with the neurosurgeons. They are continuing to watch him closely by measuring his head daily and making sure the soft spot on his head is still soft. Wyatt has a grade 4 IVH which could possibly cause hydrocephalus (fluid on the brain). So far... so good... keep those prayers coming! Today, Wyatt was awake during my visit... maybe I keep him awake?? Wyatt enjoyed his bouncy seat today, listening to the Hungry Caterpillar, getting held, and listening to me sing a bad version of the Itsy Bitsy Spider. Wyatt is growing to be a strong boy... he now weighs 9 lbs 10 oz. I am hoping to have a consultation with occupational therapy to help Wyatt get even stronger. Since he has been in bed for 6 weeks, I think it's important that he stretches and starts using his muscles.
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2 comments:
Wyatt... I like that photo album!! You were born with the gift of blogging.
Wyatt.....you are darlin! Keep eating and getting stronger. You look so big now! I love you.
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