Today was a great day with Wyatt. I got to spend the entire day with him and it was much better than yesterday. Wyatt was a wake for a large chunk of the day and it was nice and quiet for most of the day. I showed Wyatt his window and we looked outside, Child Life and OT came by to work with him as well and I added a 3rd mobile for him. I think Wyatt wins for having the most mobiles in his crib. Can you tell I really want him stimulated!! Since his crib is huge, he will be able to see a new mobile from any direction. Today, the doctor thought he had a little bit of blood in his spit up so they put him on Pedialyte for the day and he will start eating tomorrow at 2pm. Everything is fine, the doctor believes that his ng tube poked his stomach. Usually, I would love snow over the weekend, but I hope it does not snow too much. I want to see my little boy!! We are so lucky, tonight when I got home, Wyatt's NICU nurses from Hopkins e-mailed to see how he was doing, there was a hot dinner at our door step (thank you Julia), and Benji's co-workers gave Wyatt a generous gift. Thank you everyone.... we are so lucky to have your support and prayers. Also, please pray for Wyatt's CDH friend Jack who is back in the hospital.
I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Friday, December 14, 2007
Do you think Wyatt has enough mobiles?... 3
Today was a great day with Wyatt. I got to spend the entire day with him and it was much better than yesterday. Wyatt was a wake for a large chunk of the day and it was nice and quiet for most of the day. I showed Wyatt his window and we looked outside, Child Life and OT came by to work with him as well and I added a 3rd mobile for him. I think Wyatt wins for having the most mobiles in his crib. Can you tell I really want him stimulated!! Since his crib is huge, he will be able to see a new mobile from any direction. Today, the doctor thought he had a little bit of blood in his spit up so they put him on Pedialyte for the day and he will start eating tomorrow at 2pm. Everything is fine, the doctor believes that his ng tube poked his stomach. Usually, I would love snow over the weekend, but I hope it does not snow too much. I want to see my little boy!! We are so lucky, tonight when I got home, Wyatt's NICU nurses from Hopkins e-mailed to see how he was doing, there was a hot dinner at our door step (thank you Julia), and Benji's co-workers gave Wyatt a generous gift. Thank you everyone.... we are so lucky to have your support and prayers. Also, please pray for Wyatt's CDH friend Jack who is back in the hospital.
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Hi,I to have a little boy 'Kaden'with cdh who is 5 months on christmas day - i m gald to see Wyatt is doing so well and you talso picked a name with a meaning which he lives up to.Our sons name means fighter and he certainly has had to do that.Althought i m pleased to say he is now home from hospital after a 6 week stay after having his livesaving surgery done on the 2nd day of his life.Kaden is doing well apart from his feeding which all his feeds are tube fed as he has bad reflux- and wont take a bottle,apart from that he is doing well - and i hope your son will continue to go from strength to strength.
love gil and family
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