I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Friday, December 7, 2007
Good Bye Hopkins...
We learned today that Wyatt will probably be getting transferred to Mt. Washington Pediatric Hospital. It's a step down from Hopkins and it's focus is rehabilitation. We'll miss everyone at Hopkins. He has received EXCELLENT care from all the doctors and nurses. The surgeons are not in a hurry to put in the G-tube because they want Wyatt to grow stronger and heal from his other two surgeries. He will remain on the NG tube until further notice. In a month, we will have another assessment of this vocal cords and take it from there. I am hoping to have him home soon, but it looks like he may remain at Mt. Washington for about a month. We are able to give Wyatt 10ml of milk a day and the rest through the NG tube. Two good things about being transferred... free parking and it's a little closer to our house. Every step we make is scary... I remember the feeling moving from the PICU to the NICU and now we are leaving Hopkins. Wyatt will be receiving his 2 month immunizations along with the RSV vaccine before we leave and I also requested another head sonogram to ensure that everything is stable. It's scary to leave... but I am so proud of Wyatt for being so brave and strong to be at this point.
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