I am a Congenital Diaphragmatic Hernia (CDH) baby. My diaphragm developed with a hole in it and my organs were misplaced in my chest cavity. The organs pushed on my lungs, causing one lung to be very small. I was born on October 9, 2007 at Johns Hopkins. Now it is three years later: I am saying a bunch of words, I still receive foods through a g-tube and am on oxygen while I sleep. I can't walk yet, but believe I can out scoot anyone! Here is the story of my amazing and patient recovery.
Thursday, January 24, 2008
Clowny Thursday
Today two clowns came by to visit Wyatt and he really enjoyed them, especially when they were blowing bubbles. I forgot to get my camera out!! Benji worked a super long day today so I stayed with Wyatt for a little while and then my mom took over. While she was holding him, he spit up brown stuff which was dried up blood. So tonight he will get an adominal x-ray and hopefully we will find the cause of it. I also talked to the discharge nurse today explaining that I am fine with Wyatt going to Mt. Wash, but for just 11 days I don't want to stress him out. When a new patient arrives at Mt. Wash, they are tested for RSV, blood work, and usually some changes are made in their diet, plus it's a new environoment for Wyatt. I just want Wyatt to stay staus quo so he can have shunt surgery on Feb. 5th. So far there is not a bed available at Mt. Wash until Monday.
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2 comments:
Hang in there, Gina and Benji. You guys are constantly in our prayers. Gina, you are such a great advocate. Keep asking questions and making requests. That's how Wyatt will get the best of care! Take care.
Maria
Thinking of you all - from the other side of the world.Hang in there,Wyatt is so special!x
Gil
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